Agnostic.com
2 0

I have a regrettably list of diagnoses.

Primary Immunodeficiency Disorders: Total IgA Deficiency and CVID.
Autoimmune Disorders: Celiac Disease, Raynaud's Phenomena, and Lupus.
Ehlers-Danlos Syndrome, IBS-C, Epilepsy, Autism, Depression, Anxiety, PTSD, OCD, OCPD, and ticque disorder.

They thought I had Hydrostenosis Supportiva for a while, but I haven't had an attack sense I went gluten-free 16 years ago. But ly after that, I had a DTaP shot, developed Ataxia within hours, and spent 3 months in a wheelchair... Only to catch Whooping Cough the following year. That's when I developed Raynaud's and Lupus.

My Immunologist specifically reminds me not to get any more vaccines every time I see him. I don't need the reminder, I had my titres run. I don't develop antibodies in response to vaccination, so there's no point in me getting vaccinated.

Oh, the joys of being medically complex.

TaraMarshall 7 Mar 21
Share
You must be a member of this group before commenting. Join Group

Enjoy being online again!

Welcome to the community of good people who base their values on evidence and appreciate civil discourse - the social network you will enjoy.

Create your free account

2 comments

Feel free to reply to any comment by clicking the "Reply" button.

1

That could be my problem. Every time I got vaccinated for Tdap I ended up with pertussis. I've had whooping cough 3 times in 4 years back when I got my vaccinations.

I think I need to see an imunologist to determine if I have immune system issues. I know I do, but what kind? I develop new allergies at an alarming rate, and I always have a slightly elevated white blood count. (The oncologist ruled out leukemia completely, but I have one last appointment)

People with EDS are more likely to develop MAST Cell Disorder, also called MCAS in the literature.

The components of the DTaP are all killed cell, so it can't give you Pertussis. But there is a theory that it can make some of us with Primary Immunodeficiency Disorders more susceptible to catching those diseases.

@TaraMarshall I truly belief I have immunodeficiency

@LadyAlyxandrea, Your PCP can order the initial tests for PID. It's really just a different kind of blood panel.

0

I have to get my childhood immunizations - all 6 at once-because of my bone marrow transplant for AML-acute myloid leukemia once a year..

Ughh. Well, I just can't get vaccines without risking more side effects.

Recent Visitors 8

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

  • Top tags#disease #world #hell #sleep #reason #hope #video #god #friends #Diet #hello #mother #disorder #medicine #children #cancer #religion #hospital #evidence #birth #kids #animals #sin #religious #death #faith #drugs #shoes #drug #truth #anxiety #Atheist #religions #sex #addiction #weed #money #fear #soul #weather #dying #books #oil #skeptical #insane #relationship #evolution #parents #wife #cats ...

    Members 111Top

    Moderator

    Related Groups