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So I've now been diagnosed with essential tremor and Mylonic jerking? Weird

LadyAlyxandrea 8 Mar 27
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Level 7

I just looked this up. It does not sound very nice if this diagnosis is correct. All the best and keep fighting

RobH86 Level 7 Mar 28, 2018
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Level 8

Sorry to hear that, a friend/workmate/neighbour of mine has that with Huntington's disease. He has had it for quite some time and it is quite advanced but appears to be doing well over all.

Rugglesby Level 8 Mar 28, 2018

Yeah Google is not very comforting. "Well it could be deadly or deadly or progressive until you're reduced to the mental capacity of a 8 month old or it could just be medicine side effect. Or it could be deadly."

@LadyAlyxandrea Well Dave is doing fine, really. Has had it for years, still drives, works 2 jobs, hits the beach a lot. His twitching and such does become more extreme, he had to see medical specialists for his annual visit 3 months back and said it all went well. Hopefully it stays something minor or goes away for you.

@Rugglesby I'm glad he's doing well. I truly think I might have MS and the spinal lesions haven't formed yet, but I'm hoping it's just a side effect of medicine (unlikely, but gosh I hope so)
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Level 7

Best of luck. My understanding is that problems with the autonomic nervous system are common in us EDSers.

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