Does anyone have Sjogren's Syndrome? If so, how difficult was it to get diagnosed? What symptoms led to the diagnosis?
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Feel free to reply to any comment by clicking the "Reply" button.No, but I have sle-lupus. I'm now 59 and my social life is fairly over now due to extreme weakness. I understand what you're going thru. you have my good wishes coming your way!
springlover
Level 7
Apr 16, 2018
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I think there's at least one other person who mentioned Sjogren's as a diagnosis. I know a little about it, but my autoimmune disorders are Celiac, Raynaud's, and Lupus.
TaraMarshall
Level 7
Apr 13, 2018
1
I do not but MANY fellow Zebras (Ehlers Danlos ) have it...actually all of the above. Two of my kids have Raynauds along with the EDS.
Can't say I know what that is.
nvrnuff
Level 8
Apr 13, 2018
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It messes with your "moisture" systems; eyes, nose, skin, mouth. Kinda dries you out, amongst other things.
@Alimacbean my inmune disorter (polydermatomyositis) does that too, amount a list of other things. I'm yhe Queen of eyedrops, creams, oils, etc. I also drink a lot of coconut water or just clean water.
@Basilisa01 I had to look that one up. So sorry. I am going to an integrative doctor next week who can hopefully get to the bottom of this mess.
@Alimacbean Thank you for the info, appreciated. Hope you can find some relief.
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