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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "hello" By TaraMarshall (4) Posts by anyone

Shared from General & Hellos
Jun 26, 2019Jun 2019

Posted by PiperMckenna
Hello! I'm Piper. I've been diagnosed with Elhers-Danlos Syndrome. Anyone else have this diagnosis? I'm currently looking for recommendations for a nice shoulder brace because my shoulder just won't stay the heck in, tips on living with EDS, info ...
2 comments
Autoimmune Disorders and Rare
Apr 21, 2019Apr 2019

Posted by Swanky
Hello, I'm wondering if anyone has heard of an experimental therapy for essentially stalling auto-immune disease called Helminthic Therapy? It's basically ingesting live parasites (e.g., worms) to provoke an infection that requires the immune system ...
0 comments
Autoimmune Disorders and Rare
Mar 8, 2019Mar 2019

Posted by Swanky
Hello, I have been living with a Systemic Sclerosis limited/cutaneous diagnosis since 1994, and was just recently diagnosed with Antiphospholipid Syndrome, a blood clotting disorder. I'm wondering if anyone has these conditions? Thank you.
1 comment
Autoimmune Disorders and Rare
Feb 18, 2019Feb 2019

Posted by Agenderaj
POLLHello! My name is AJ and my pronouns are they/them and he/him. I'm really happy to have found this group! I have gastroparesis and CVS, among other things. I was wondering who else here has GI conditions/issues, what they are, and how we might be ...
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3 comments
Autoimmune Disorders and Rare
Jul 14, 2018Jul 2018

Posted by Demonica29
Hello and gentle hugs all around. I have fibromyalgia and arthritis in my neck. Cancer and chemo left me with permanent peripheral neuropathy and horrible panic attacks. But hell, I do t have cancer anymore.
3 comments
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jun 18, 2018Jun 2018

Posted by MusicLvr
Hello, I'm new here. I have fibro, DDD, arthritis, joint hypermobility, among some other things. Saw a new rheumy today, bc mine no longer takes my ins. The new one was awful. Treated me like a junkie, wouldn't let me finish a sentence. Looking ...
5 comments
Autoimmune Disorders and Rare
Jun 17, 2018Jun 2018

Posted by BookDeath
Hello, all. I have: Post-stroke syndrome (now rearing its ugly head); collagenous colitis (a form of inflammatory bowel disease); epilepsy; and osteoporosis, mild CP, AND an AVN. Do I fit this group?
4 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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