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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "reason" By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
Jun 27, 2019Jun 2019

Posted by PiperMckenna
I'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha
5 comments
Autoimmune Disorders and Rare
Apr 21, 2019Apr 2019

Posted by Swanky
Hello, I'm wondering if anyone has heard of an experimental therapy for essentially stalling auto-immune disease called Helminthic Therapy? It's basically ingesting live parasites (e.g., worms) to provoke an infection that requires the immune system ...
0 comments
Autoimmune Disorders and Rare
Apr 15, 2019Apr 2019

Posted by LadyAlyxandrea
So doc cleaned out my incisions and reglued them shut. Apparently for whatever reason those two just don't want to heal shut and that's why they keep getting infected. She hopes the glue will urge them to shut but if they don't start closing by next ...
1 comment
Autoimmune Disorders and Rare
Mar 17, 2019Mar 2019

Posted by LadyAlyxandrea
Today was pretty good. I slept 8 hours and managed to stay awake the whole day without a nap. I cleaned my wounds and took a real shower, washed my hair and everything. That was a little too gunho, alas, and I nearly fainted in the shower. But I'm ...
3 comments
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by Dingodog
My wife was misdiagnosed with MS a few years back. She was 60, asymptomatic but had a plaque pattern on consistant with, but not exclusive to MS. They started he on an MS drug right away. I later learned the there is no medical therapy that will ...
0 comments
Autoimmune Disorders and Rare
Aug 15, 2018Aug 2018

Posted by LadyAlyxandrea
Monday I was given a steroid shot for an allergy attack. Normally this would help my pain substantially. However the last three days I've hurt so bad it's like triple the normal levels. Now either the steroids didn't work, or they're working and ...
3 comments
Autoimmune Disorders and Rare
Jun 17, 2018Jun 2018

Posted by BookDeath
Hello, all. I have: Post-stroke syndrome (now rearing its ugly head); collagenous colitis (a form of inflammatory bowel disease); epilepsy; and osteoporosis, mild CP, AND an AVN. Do I fit this group?
4 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by Cassandra
I fell off my porch yesterday. I have fibromyalgia & diabetes (& others), which I've never received proper medical care for. I get periodic flare ups of inflammation that cause muscle pain and weakness. For the last few weeks, my left ankle has ...
5 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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