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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Posts Tagged "world" By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
Jun 19, 2019Jun 2019

Posted by LadyAlyxandrea
I didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts. Today i got multiple sets of stitches in my shoulder and my thigh. Dermatology removed some deep benign skin tumors to send to ...
1 comment
Autoimmune Disorders and Rare
May 18, 2019May 2019

Posted by LadyAlyxandrea
I am currently working with Amber pharmacy out of Omaha with my humira program and I have to say, they are the most comprehensive and fully amazing pharmacy I've ever seen. All the pharmacies around here just fill meds but this place has coordinators...
0 comments
Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Tried googling support for non-religious terminally ill and all I get is a bunch of links for faith with dying and how faith is dying. What about those of us dying who don't have a faith? Where's our help?
1 comment
Autoimmune Disorders and Rare
Mar 19, 2019Mar 2019

Posted by LadyAlyxandrea
Day 6, not one person from work has asked me how I'm doing during my recovery. Not a single person. Today this makes me feel really sad and uncared for. When lisa has her surgery we all talked to her every day and made sure she was doing alright. ...
1 comment
Autoimmune Disorders and Rare
Jan 9, 2019Jan 2019

Posted by LadyAlyxandrea
I need to rant. Crps comes with debilitating brain fog. I'm talking Alzheimer's level forgetfulness. Unfortunately my mother can't seem to comprehend this, and is constantly berating me and insulting me and talking down to me. Today I forgot to ...
1 comment
Autoimmune Disorders and Rare
Dec 23, 2018Dec 2018

Posted by sassygirl3869
13 People Who Stood Up For Chronic Illness
1 comment
Autoimmune Disorders and Rare
Nov 30, 2018Nov 2018

Posted by itsmedammit
With any luck I will be finding a diagnosis in the near future. I have some sort of autoimmune thing going on, but not sure what. I hate, hate, hate having to spend time trying to figure this out but my pain compels me to do something. Saw a ...
3 comments
Autoimmune Disorders and Rare
Nov 21, 2018Nov 2018

Posted by LadyAlyxandrea
Aaaaand I have pneumonia. Goodbye cruel world. Of all the bugs in the air I just had to get the pneumococcals. Bear in mind last time I had pneumonia I broke 2 ribs and split my abdominal muscles open. And that was before my immunosuppression. ...
1 comment
Shared from Health & Happiness
Oct 29, 2018Oct 2018

Posted by LadyAlyxandrea
So I finally have the date for MEETING my new neurosurgeon. November 12th. Hes supposedly a cervical specialist, but I'm incredibly nervous. Also he looks like Tim Curry so I'm even more nervous. Update Fuck that guy. Nope. Just cancelled my...
7 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by SkyBlue_Crayon
Hi, I have psoriatic arthritis and Raynaud’s. Happy to connect with all of you.
5 comments
Autoimmune Disorders and Rare
Sep 9, 2018Sep 2018

Posted by ArtzyNerd
Hi all. I'm celiac and PCOS. Also have IgA deficiency
2 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victory Got my tags today. (Cost 200 dollars more than they were supposed to) Budgeted with 'help' from my slave driver I mean mother. She is ridiculous. Somehow after she budgeted I had 5 dollars left for groceries for 2 weeks, and had me ...
1 comment
Autoimmune Disorders and Rare
Jun 20, 2018Jun 2018

Posted by rogeralyn
Having one of those days where I want to give in and scream! Not very manly I know but don't care right now.
3 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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