I will, I am glad to find someone else with this. You can tell me what I am in for. Mine was supposed to be morpheus and for 50 years hasnt been an issue. I didnt know it could change.
I am sorry to hear yours is so bad. I am hoping mine won't be so but I really don't know what to expect. I do know I am suffering from extreme fatigue unlike any I have ever endured. How can I handle that?

Contact me on messenger if youwant more info.

I am already working to get set up with the lady over in Seynour who knows the ins and outs of applying. She helps other people and is a nurse practioner by trade. I want to make sure of the status of this before I do apply,

@misstuffy The application is critical. Remember this, it is used by the administration to disqualify you - THAT is it's primary purpose, keep that in mind when filling it out. Best to get a professional (lawyer or advocate) to assist in filling it out.

@RobCampbell I have an advocate

I am reading up and making sure the youtube videos are by actual Scleroderma doctors. THere is a lot of mis information out there too.

@misstuffy You might want to check on the NIH or other reputable group. They often have videos on their sites and you won't get scared by someone posting false into..

Sorry you're going through this - but glad you're getting to a diagnosis.

@RavenCT When I mentioned it to the doctors and showed them my knee I had no idea it was relevant to my current condition. We will soon know.

@misstuffy Youtube would be my very LAST choice in getting reliable information for medical conditions. Don't believe anything you hear on socal media (well except for this community of course). There is good advice here on where to find real doctors online, use it!

Funny thing is, I was only 7 years old when first diagnosed. That is unusual. It threatened to overtake a knee joint and in fact did atrophy everything beneath the skin on that knee. But until recently I was under the impression it was strictly the localized "Morpheus" and was dormant. Now I am learning this is not necessarily true. I will be 57 in May. Right now, just have to be patient and wait for the test results and take it from there. I would prefer to keep working. My friends in and near DM have offered me homes with them. One is my high school buddy and the other his mother whom I am very close too. UNtil I know more I am just going to wait for the doctors to tell me more.

I will, thank you

Thank you, very much appreciate that.

Good luck to you. I can't keep my job as the chemicals triggered this. I am waiting for test results to see what is what with my own health. I was diagnosed in 1968 but it has always seemed dormant and never gave me any issues that I was aware of.. Now I am learning a plethora of issues can be attibuted to this if it is indeed active within my body ad I had no idea.

@misstuffy The chemicals at your job caused this?

@kmdskit3 a type of paint thinner triggered the Ezema for sure and maybe the Scleraderma. I don't know for sure, Waiting for the doctors to get test reaults.

@misstuffy Hope all this doesn't fuck things up too much with your finances.

@kmdskit3 The eczema yes, but I was diagnosed with the Scleroderma as a child and the chemicals may have triggered it to become active.

@kmdskit3 It is already messing with me financially.

@misstuffy SSI Disability? It takes quite awhile but have you checked it out?

@misstuffy Paint thinner is highly unlikely the cause of your condition. I'm no doctor, but was a painter for over 20 yrs and have been immersed in the stuff. I'm pretty sure you are referring to Methyl Ethyl Keytone, the primary ingredient in laquer thinner, its bad stuff and attacks the organs, brain but have never heard or seen of a painter afflicted with skin conditions as a result of handling it or Acetone. The thinners may have only activated your overactive immune system, but it could be as simple as the hay you feed your farm, animals, and is far more likely the irratant responsible.

@kmdskit3 Looking into it

@RobCampbell it's a trigger which is a bit different and yes it triggered my eczema, we have established that much by the doctors