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Non-Hodgkin's Large Cell B Lymphoma.
According to the interpretation of a PET Scan, I have recovered from Lymphoma due to the R-CHOP chemotherapy treatment. One of the things I was not satisfied with during my treatment was that the Oncology department staff could not/did not know or explain what to expect physically from the chemo treatment.

If you are about to go through R-CHOP treatment and would like to know what to expect, let me know and I will tell you what I went though and maybe save you from the uncertainty I experienced.

dahermit 7 Jan 2
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0

Level 9

Congratulations, BUT, not wishing to 'rain on your parade' you do realise that 'recovery' and cure are 2 very different things.
Recovery = remission from the signs/symptoms, etc, of the original cancer/s,
Cure = you've been FREE of those signs/symptoms, etc, for at least 5 or more years.

I am well aware of my state of being. I failed on all 9 or 10 or so of the international prognosis indicators, so I should not have survived. Furthermore, the same factors indicate that I will likely have a recurrence of the disease and I know that the my chances if that happens are very slim. But, being a Asperger's Syndrome person and 75 years old it does not really matter much to me...if I don't die from cancer, I will likely die from something else (stroke, aneurysm, heart disease, etc.) soon enough anyway.

@dahermit That's a good frame of mind to have, after all Death is one of the certainties in life, No-one can escape death.

@Triphid Yup...I had to be born to get here, will have to die to leave.
1

Level 8

I use Cancer UK as a valuable, easily assessible site for my patients:
[cancerresearchuk.org]
Hope that helps?
Jayne

I do not find such sites useful inasmuch as they are general boilerplate such as I got from my outpatient oncology clinic.

@dahermit I think this one is exceptionally good. There are also links there to online discussion groups.

@Amisja I have perused online discussion groups and find that they are mostly of a emotional support nature which, as a high-functioning Asperger's Syndrome person, of little to no utility for me...I do not need/did not need emotional support, I only seek data. The posters on such sites are laymen, not medical persons.

@dahermit Would you like me to find some medical articles? I can check the international journals and RC medical stuff? Might take me a while

@Amisja No thanks...I have performed many searches myself.

@dahermit ok

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