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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Commented Posts By TaraMarshall (4) (Page 8 / 9) Posts by anyone

Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Managed to flip my sleep schedule back to normal, but now I'm constantly tired again and taking naps again. I think the infection is on the downward move, getting better, so maybe I'm just exhausted from fighting that and healing. oh and my new ...
1 comment
Autoimmune Disorders and Rare
Mar 22, 2019Mar 2019

Posted by LadyAlyxandrea
My new dentist is a cunning one. He didnt tell me until I was in the chair that we were doing a root canal today. He said he knew I'd try to put it off if I knew. He's very correct. I've never had a root canal before, and I'm already terrified of ...
1 comment
Autoimmune Disorders and Rare
Mar 19, 2019Mar 2019

Posted by LadyAlyxandrea
Day 6, not one person from work has asked me how I'm doing during my recovery. Not a single person. Today this makes me feel really sad and uncared for. When lisa has her surgery we all talked to her every day and made sure she was doing alright. ...
1 comment
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by Nunulady
The Science of Stress and How Our Emotions Affect Our Susceptibility to Burnout and Disease . I hope you can access this. It's an article from Brain Pickings.
1 comment
Autoimmune Disorders and Rare
Feb 11, 2019Feb 2019

Posted by Lutherzme
Once free, drug for rare disease now being sold for $375K a year.
1 comment
Autoimmune Disorders and Rare
Mar 16, 2019Mar 2019

Posted by LadyAlyxandrea
Post op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out. Today was my moms birthday. I managed the hazardous trek up stairs to attend her birthday lunch. I ate a slice and a half of pizza...
1 comment
Autoimmune Disorders and Rare
Mar 13, 2019Mar 2019

Posted by LadyAlyxandrea
I LIVE almost home now. I'm on a lot of meds so feeling pretty okay my calves are sore AF and my stomach was really painful until the drugs kicked in. I'm pretty good though I got some nugs and my mom is helping me get around. Since I haven't ...
1 comment
Autoimmune Disorders and Rare
Mar 8, 2019Mar 2019

Posted by Swanky
Hello, I have been living with a Systemic Sclerosis limited/cutaneous diagnosis since 1994, and was just recently diagnosed with Antiphospholipid Syndrome, a blood clotting disorder. I'm wondering if anyone has these conditions? Thank you.
1 comment
Autoimmune Disorders and Rare
Aug 16, 2020Aug 2020

Posted by Sonja44
Sums it up.
0 comments
Autoimmune Disorders and Rare
Jan 22, 2019Jan 2019

Posted by Nunulady
Does anyone here have Lupus? Have you ever had the cash on your face? Thanks.
0 comments
Autoimmune Disorders and Rare
Jul 29, 2020Jul 2020

Posted by PandaCat
I need to lose some COVID weight but it’s so frustrating wanting to exercise after dinner bc I have insulin on board and then my sugar goes low. Then I load up on sugar to get it right again. Grrr... (autoimmune diabetes)
0 comments
Autoimmune Disorders and Rare
Jul 2, 2019Jul 2019

Posted by PiperMckenna
Always cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.
0 comments
Autoimmune Disorders and Rare
Feb 20, 2019Feb 2019

Posted by sassygirl3869
Feeling guilty on good days with chronic illness? Does anyone feel this way?
0 comments
Autoimmune Disorders and Rare
Mar 9, 2019Mar 2019

Posted by KarlaMcNeese
Anyone else here living with multiple sclerosis? I was diagnosed in 2013. Not currently on any dmd's, although in the past I've been on Copaxone (hated the needles).
0 comments
Autoimmune Disorders and Rare
Mar 9, 2019Mar 2019

Posted by Razorbacktat
Anyone research Tumor Necrosis Factor -a reducing diet or lifestyle. To my research it seems to be the key to all my aliments.
0 comments
Autoimmune Disorders and Rare
May 27, 2019May 2019

Posted by LadyAlyxandrea
So I'm officially immunosuppressed. My secondary injection went well and we are already showing signs that my immune system is suppressing. That's exactly what we want, but I forgot a crucial variable when we decided on this endeavor. I am always in...
0 comments
Autoimmune Disorders and Rare
May 18, 2019May 2019

Posted by LadyAlyxandrea
I am currently working with Amber pharmacy out of Omaha with my humira program and I have to say, they are the most comprehensive and fully amazing pharmacy I've ever seen. All the pharmacies around here just fill meds but this place has coordinators...
0 comments
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
May 10, 2019May 2019

Posted by AnonySchmoose
First post in this group: In 2017 I experienced a severe auto-immune flare up that lasted about 6 weeks. Eventually I was diagnosed with systemic lupus and put on a very expensive immune system suppressant. Have begun dodge triggers and find ...
0 comments
Autoimmune Disorders and Rare
May 4, 2019May 2019

Posted by LadyAlyxandrea
Well my belly button finally healed. My other two are starting to, i think. Took them long enough. Today is my last 12 hour shift and my last over night. Now on saturdays I'll work 7p-3a, which is much more doable for me since my usual bedtime is ...
0 comments
Autoimmune Disorders and Rare
Apr 21, 2019Apr 2019

Posted by Swanky
Hello, I'm wondering if anyone has heard of an experimental therapy for essentially stalling auto-immune disease called Helminthic Therapy? It's basically ingesting live parasites (e.g., worms) to provoke an infection that requires the immune system ...
0 comments
Autoimmune Disorders and Rare
Mar 31, 2019Mar 2019

Posted by LadyAlyxandrea
Goooooood morning! I slept 19 hours. I return to work tomorrow. I forsee I shall suffer lol
0 comments
Autoimmune Disorders and Rare
Jun 29, 2018Jun 2018

Posted by Flexymorals
I had Saturday Night Palsy once. Couldn’t move my hand for two months.
0 comments
Autoimmune Disorders and Rare
Jul 1, 2018Jul 2018

Posted by BookDeath
Just in case anyone is interested, there is also now a Chronic Pain and Pain Management group.
0 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
A gentle reminder
0 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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