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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Viewed Posts By TaraMarshall (4) Posts by anyone

Shared from Health & Happiness
Apr 30, 2018Apr 2018

Posted by TaraMarshall
So, I was wondering if anyone else had read Dr. Terry Wahls' books on nutrition/special diets for autoimmunity? I've done most of her suggestions, and pushed my ANA numbers for Lupus into remission. I would consider that fairly successful, ...
2 comments
Autoimmune Disorders and Rare
Apr 4, 2018Apr 2018

Posted by LadyAlyxandrea
Every time
4 comments
Autoimmune Disorders and Rare
Jun 13, 2018Jun 2018

Posted by LadyAlyxandrea
So today I saw my 'new' pain specialist. I say new but I've been a coworker of his for 3 years. He took one look at my cervical CT and shuddered. 3 neurosurgeons and a spinal surgeon and a different pain specialist ALL said my neck looked fine. ...
1 comment
Shared from Health & Happiness
Oct 29, 2018Oct 2018

Posted by LadyAlyxandrea
So I finally have the date for MEETING my new neurosurgeon. November 12th. Hes supposedly a cervical specialist, but I'm incredibly nervous. Also he looks like Tim Curry so I'm even more nervous. Update Fuck that guy. Nope. Just cancelled my...
7 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by LadyAlyxandrea
I want to start a daily ritual here. Id like as many of you to participate as you can and feel able to. I'm tired of pushing myself to try to meet the unrealistic expectations of others. Not everyone can overcome their disabilities through sheer ...
6 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments
Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by LadyAlyxandrea
I am pretty sure today will be the last day I can wear makeup. This is a acceptance because I've always really loved how pretty I am with makeup on, but as I struggled with my eyeliner and worse with my mascara I realized it's probably just not ...
2 comments
Autoimmune Disorders and Rare
Apr 22, 2018Apr 2018

Posted by LadyAlyxandrea
I'm allergic to tylenol and it is ridiculous. You guys have any idea how many things have tylenol in them? When I explain to the doctors what tylenol does to me, they shrug it off and say it isn't a true allergy, and act like I exaggerate. I don't ...
5 comments
Autoimmune Disorders and Rare
Apr 5, 2018Apr 2018

Posted by LadyAlyxandrea
So after work I checked into our e.r. to get a torodol shot for my perpetual migraine. In the middle of getting examined, my left nostril starts dripping water. Doctor R ks "Hm I don't feel right just popping you a cocktail and letting you run off. I...
2 comments
Autoimmune Disorders and Rare
May 19, 2018May 2018

Posted by maryjane420
I have hidradenitis suppurativa. I am trying elimination diet to find out if there are any foods that might be triggering my flare ups. The doc wants me to try Humira. Not gonna happen! To scared of the side effects. Is there anyone here that has ...
5 comments
Autoimmune Disorders and Rare
Apr 25, 2018Apr 2018

Posted by Alimacbean
I was told today that I have extremely low vitamin D. Getting me on a supplement. Hoping this is what is the cause of my fibromyalgia. It's not very common to have vitamin D levels checked and the symptoms of deficiency mimic fibromyalgia symptoms.
7 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by JesseBoren
I have been diagnosed with a few rare diseases, some right some wrong. I've seen over 30 doctors in the last 18 years, apparently I'm a medical mystery. The first one I got was Trigeminal Neuralgia which lasted 6 months, thankfully I have had no ...
5 comments
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by memorylikeasieve
Fuckin hell. Last night, while I was trying to sleep, my neck subluxed so badly that it made a loud, painful crack. No kind of pillow or arrangement of bedding seems to help keep my neck stable. >.<
4 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Lutherzme
Anybody else have to do this once a week?
5 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by nutrition_nerd
How many of you have heard of Adverse Childhood Experiences? There was a study conducted by the CDC and Kaiser Permanente, about the effect of childhood trauma on the body. The research is astounding. People with >4 Adverse Childhood Experiences had ...
7 comments
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by caraE
Hi, Does any one know about bdp(boderline personality) How can I manage it ??
4 comments
Autoimmune Disorders and Rare
Jul 14, 2018Jul 2018

Posted by Demonica29
Hello and gentle hugs all around. I have fibromyalgia and arthritis in my neck. Cancer and chemo left me with permanent peripheral neuropathy and horrible panic attacks. But hell, I do t have cancer anymore.
3 comments
Autoimmune Disorders and Rare
Apr 22, 2018Apr 2018

Posted by CarolinaGirl60
Greetings, earthlings. I have fibromyalgia, gastroparesis...and suspect that I have dysautonomia. Chronic pain—that’s one way to put it! I it constant pain?.
4 comments
Autoimmune Disorders and Rare
Apr 13, 2018Apr 2018

Posted by jjenakabc
Holy shit!! I can NOT believe what Im seeing!! EDS peeps!! YES!!!!! My EDS/ Chronic Pain, has really affected EVERY part of my life and although I KNOW we are not supposed to let it become our IDENTITY Im finding it VERY hard.
3 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
I miss the simple things about not having chronic pain. I miss cute shoes. I miss being able to stub my toe, say ouch, and get on with my day. I miss standing up straight after sitting down. I miss going to theme parks and walking the whole day. I ...
4 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by LadyAlyxandrea
This stuff is mind blowing. I typically have very little trust in homeopathy but I rubbed this on my neck and I can't remember it ever being this uninflammed. It's so amazing I want to bathe in it
3 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by GreatNani
Anyone here with EDS?
4 comments
Autoimmune Disorders and Rare
Jul 4, 2018Jul 2018

Posted by LadyAlyxandrea
Anyone else's skin do this with even a slight touch? I'm a human etcha-sketch
3 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
Just watched Brain on Fire, a true story about an auto immune disorder attacking the brain. It made me emotional to see how the doctors wanted to diagnose her incorrectly because it was easier. Shame that we live in pain, often misdiagnosed because ...
3 comments
Autoimmune Disorders and Rare
Apr 20, 2018Apr 2018

Posted by LadyAlyxandrea
Interesting development So for as long as I've had my pain, steroids of any kind have done...well...nothing. So a few weeks ago I developed pitiriusis rosea, a viral infection like chicken pox that covers your body in a massive amount of ringworm ...
5 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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