Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Commented Posts By TaraMarshall (4) Posts by anyone

Autoimmune Disorders and Rare
Apr 25, 2018Apr 2018

Posted by Alimacbean
I was told today that I have extremely low vitamin D. Getting me on a supplement. Hoping this is what is the cause of my fibromyalgia. It's not very common to have vitamin D levels checked and the symptoms of deficiency mimic fibromyalgia symptoms.
7 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by nutrition_nerd
How many of you have heard of Adverse Childhood Experiences? There was a study conducted by the CDC and Kaiser Permanente, about the effect of childhood trauma on the body. The research is astounding. People with >4 Adverse Childhood Experiences had ...
7 comments
Shared from Health & Happiness
Oct 29, 2018Oct 2018

Posted by LadyAlyxandrea
So I finally have the date for MEETING my new neurosurgeon. November 12th. Hes supposedly a cervical specialist, but I'm incredibly nervous. Also he looks like Tim Curry so I'm even more nervous. Update Fuck that guy. Nope. Just cancelled my...
7 comments
Autoimmune Disorders and Rare
May 4, 2018May 2018

Posted by TampaHeathen
Hi, new member. I was diagnosed with Hashimoto's Thyroiditis on the same day as the Boston Marathon bombing (early reports were playing on the TV set in the waiting room as I was walking out). While primarily a disease common to females, one in ...
6 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by LadyAlyxandrea
I want to start a daily ritual here. Id like as many of you to participate as you can and feel able to. I'm tired of pushing myself to try to meet the unrealistic expectations of others. Not everyone can overcome their disabilities through sheer ...
6 comments
Autoimmune Disorders and Rare
Apr 11, 2018Apr 2018

Posted by KKGator
Just needing to gripe a little. Having a major fibro-flare. It's been going on for about 3 months now. Not taking anything but Tylenol for pain, which is migrating all over the place. Wish I had a big bag of weed!!!! Seems to be the only thing ...
6 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by CarolinaGirl60
I’m in the hospital. Had a gastroparesis flare plus a nasty virus. Feeling MUCH better today; might go home tomorrow.
6 comments
Autoimmune Disorders and Rare
Aug 20, 2018Aug 2018

Posted by LadyAlyxandrea
My short term memory is so bad. I put like 4 coats of deodorant on in the morning because I forget whether or not I've put it on. I constantly forget to take my lunch to work or take my lunch box home after work. I forget my wallet at least once a ...
6 comments
Autoimmune Disorders and Rare
Aug 18, 2018Aug 2018

Posted by CarolinaGirl60
???Sigh. My kids showed up today for an ‘intervention’. My going to the ER last weekend, then being admitted, was apparently too much. Too much what, I’m not sure. My son tells me I’m depressed and that’s why I vomit and stay in bed all ...
5 comments
Autoimmune Disorders and Rare
May 19, 2018May 2018

Posted by maryjane420
I have hidradenitis suppurativa. I am trying elimination diet to find out if there are any foods that might be triggering my flare ups. The doc wants me to try Humira. Not gonna happen! To scared of the side effects. Is there anyone here that has ...
5 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
I've decided that once my bankruptcy is finalized apply for disability. Even now I do it reluctantly and rather like a child trying eat their veggies. I don't want . I really passionately don't want . It feels like admitting defeat. Like giving ...
5 comments
Autoimmune Disorders and Rare
Apr 22, 2018Apr 2018

Posted by LadyAlyxandrea
I'm allergic to tylenol and it is ridiculous. You guys have any idea how many things have tylenol in them? When I explain to the doctors what tylenol does to me, they shrug it off and say it isn't a true allergy, and act like I exaggerate. I don't ...
5 comments
Autoimmune Disorders and Rare
Apr 20, 2018Apr 2018

Posted by LadyAlyxandrea
Interesting development So for as long as I've had my pain, steroids of any kind have done...well...nothing. So a few weeks ago I developed pitiriusis rosea, a viral infection like chicken pox that covers your body in a massive amount of ringworm ...
5 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by JesseBoren
I have been diagnosed with a few rare diseases, some right some wrong. I've seen over 30 doctors in the last 18 years, apparently I'm a medical mystery. The first one I got was Trigeminal Neuralgia which lasted 6 months, thankfully I have had no ...
5 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by vita
Anyone here battling chronic Lyme disease and coinfections? If so, how are you handling your presumably pro-science outlook with your denied-by-science diagnosis? (To anyone who might feel like telling me I don't have CLD, you should know that it ...
5 comments
Autoimmune Disorders and Rare
Jun 18, 2018Jun 2018

Posted by MusicLvr
Hello, I'm new here. I have fibro, DDD, arthritis, joint hypermobility, among some other things. Saw a new rheumy today, bc mine no longer takes my ins. The new one was awful. Treated me like a junkie, wouldn't let me finish a sentence. Looking ...
5 comments
Autoimmune Disorders and Rare
Aug 16, 2018Aug 2018

Posted by JesseBoren
They finally put a label on my illness after 18 years of searching, Cramping fasciculation syndrome.
5 comments
Autoimmune Disorders and Rare
Aug 19, 2018Aug 2018

Posted by Alimacbean
My mind so badly wants to get in shape and lose this 25 pounds weighing so heavily on me, in more ways than one. But my body is exhausted at the end of the day and longs to rest on the couch counting the minutes until it's bed time. I miss my ...
5 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by SkyBlue_Crayon
Hi, I have psoriatic arthritis and Raynaud’s. Happy to connect with all of you.
5 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Haemish1
Any Hashimotos people here?
5 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by Cassandra
I fell off my porch yesterday. I have fibromyalgia & diabetes (& others), which I've never received proper medical care for. I get periodic flare ups of inflammation that cause muscle pain and weakness. For the last few weeks, my left ankle has ...
5 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Lutherzme
Anybody else have to do this once a week?
5 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments
Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by Monica
Hi everyone! I'm Monica and I have Lupus and my Rheumy said I also have fibromyalgia. I live in CA but I'm from Brooklyn, NY.
5 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by sassygirl3869
Chronic Illness Makes it Hurtful to Look at Social Media?
5 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

  • Top tags#disease #world #hell #sleep #reason #hope #video #god #friends #Diet #hello #mother #disorder #medicine #children #cancer #religion #hospital #evidence #birth #kids #animals #sin #religious #death #faith #drugs #shoes #drug #truth #anxiety #Atheist #religions #sex #addiction #weed #money #fear #soul #weather #dying #books #oil #skeptical #insane #relationship #evolution #parents #wife #cats ...

    Members 111Top

    Moderator

    Related Groups