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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Commented Posts By TaraMarshall (4) (Page 7 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victory Got my tags today. (Cost 200 dollars more than they were supposed to) Budgeted with 'help' from my slave driver I mean mother. She is ridiculous. Somehow after she budgeted I had 5 dollars left for groceries for 2 weeks, and had me ...
1 comment
Autoimmune Disorders and Rare
Jul 25, 2018Jul 2018

Posted by rogeralyn
Thought this was interesting in general. "These 9 behaviors could cut your dementia risk by 35 percent"
1 comment
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by LadyAlyxandrea
Behold friends! My feet after one hour of cooking. Notice the soft ball sized ankle swelling, the horrific spasm that has my toes locked in a twisted position. Ahhhh multifocal dystonia is so much FUN. Freaking EDS. when people ask why I need a ...
1 comment
Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
This is good. It's still difficult and hard.
1 comment
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by dawilderone
Ulcerative colitis and psoriatic arthritis. Had no idea that UC was auto-immune until informed by Dr who diagnosed PA
1 comment
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Initiation of Phase 2 Clinical Trial of Therapeutic Vaccine for Celiac Disease
1 comment
Autoimmune Disorders and Rare
Oct 5, 2018Oct 2018

Posted by rogeralyn
Well, no big surprise here. Rules Are for Schmucks: Trashing Research:
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Multiple Sclerosis Relief
1 comment
Autoimmune Disorders and Rare
Oct 13, 2018Oct 2018

Posted by sassygirl3869
Medical Reasons For Using Cannabis
1 comment
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Okay...Um....ummm So I bought a bunch of halloween discounted candy and in it was a bag of oreo candy bars. I ate a SHIT TON yesterday and today (not a good idea but they tasted so good!) They contain hazelnut. Something I didnt realize until just...
1 comment
Autoimmune Disorders and Rare
Nov 21, 2018Nov 2018

Posted by LadyAlyxandrea
Aaaaand I have pneumonia. Goodbye cruel world. Of all the bugs in the air I just had to get the pneumococcals. Bear in mind last time I had pneumonia I broke 2 ribs and split my abdominal muscles open. And that was before my immunosuppression. ...
1 comment
Autoimmune Disorders and Rare
Dec 6, 2018Dec 2018

Posted by LadyAlyxandrea
If you ever feel like someone doesn't really listen to you, just remember I told my GP that I was being referred to a specialist for M.S. and he said "oh that's good"
1 comment
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
1 comment
Autoimmune Disorders and Rare
Dec 23, 2018Dec 2018

Posted by sassygirl3869
13 People Who Stood Up For Chronic Illness
1 comment
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
Fun stuff! My brother and father have the flu. Bad. Plot twist my stupid brother sipped out of my pop the other day too. If you recall I'm immunosuppressed. And last night I woke up with my throat on fire. Now it's still tender but not at all as ...
1 comment
Autoimmune Disorders and Rare
Mar 28, 2019Mar 2019

Posted by Lutherzme
Good article
1 comment
Autoimmune Disorders and Rare
Jun 19, 2019Jun 2019

Posted by LadyAlyxandrea
I didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts. Today i got multiple sets of stitches in my shoulder and my thigh. Dermatology removed some deep benign skin tumors to send to ...
1 comment
Autoimmune Disorders and Rare
Apr 15, 2019Apr 2019

Posted by LadyAlyxandrea
So doc cleaned out my incisions and reglued them shut. Apparently for whatever reason those two just don't want to heal shut and that's why they keep getting infected. She hopes the glue will urge them to shut but if they don't start closing by next ...
1 comment
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
HUZZAH I am finally getting my ovary and fallopian tubes removed! Without no husbands permission! How bout that.
1 comment
Autoimmune Disorders and Rare
Jan 9, 2019Jan 2019

Posted by LadyAlyxandrea
I need to rant. Crps comes with debilitating brain fog. I'm talking Alzheimer's level forgetfulness. Unfortunately my mother can't seem to comprehend this, and is constantly berating me and insulting me and talking down to me. Today I forgot to ...
1 comment
Autoimmune Disorders and Rare
Aug 15, 2020Aug 2020

Posted by Sonja44
Im new here. Just popping in to say hi.
1 comment
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by LadyAlyxandrea
So two days ago I started my new anti-epileptic, topamax. I'm on a really really low dose so far so I haven't really noticed any changes. However for the last two days I've thought I've been losing my mind. Every soda I drank tasted flat and stale ...
1 comment
Autoimmune Disorders and Rare
Aug 15, 2020Aug 2020

Posted by Sonja44
This meme cracks me up. I'm Fine.
1 comment
Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Tried googling support for non-religious terminally ill and all I get is a bunch of links for faith with dying and how faith is dying. What about those of us dying who don't have a faith? Where's our help?
1 comment
Autoimmune Disorders and Rare
Mar 26, 2019Mar 2019

Posted by LadyAlyxandrea
You've heard of Angels in the Outfield Well get ready for Almonds in my Icecream Ffs I cannot get a break
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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