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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Viewed Posts By TaraMarshall (4) (Page 7 / 9) Posts by anyone

Autoimmune Disorders and Rare
Oct 13, 2018Oct 2018

Posted by sassygirl3869
Medical Reasons For Using Cannabis
1 comment
Autoimmune Disorders and Rare
Nov 21, 2018Nov 2018

Posted by LadyAlyxandrea
Aaaaand I have pneumonia. Goodbye cruel world. Of all the bugs in the air I just had to get the pneumococcals. Bear in mind last time I had pneumonia I broke 2 ribs and split my abdominal muscles open. And that was before my immunosuppression. ...
1 comment
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by JulieBFree
I was diagnosed with Type 1 diabetes shortly after my daughter was born in 2008. I also have low thyroid and arthritis that (thankfully) only flares up once in a while. Thanks for creating this group. :)
1 comment
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victories: I washed the dishes and remembered my lunch today
1 comment
Autoimmune Disorders and Rare
Dec 6, 2018Dec 2018

Posted by LadyAlyxandrea
If you ever feel like someone doesn't really listen to you, just remember I told my GP that I was being referred to a specialist for M.S. and he said "oh that's good"
1 comment
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
0 comments
Autoimmune Disorders and Rare
Feb 11, 2019Feb 2019

Posted by Lutherzme
Once free, drug for rare disease now being sold for $375K a year.
1 comment
Autoimmune Disorders and Rare
Jan 9, 2019Jan 2019

Posted by LadyAlyxandrea
I need to rant. Crps comes with debilitating brain fog. I'm talking Alzheimer's level forgetfulness. Unfortunately my mother can't seem to comprehend this, and is constantly berating me and insulting me and talking down to me. Today I forgot to ...
1 comment
Autoimmune Disorders and Rare
Mar 9, 2019Mar 2019

Posted by Razorbacktat
Anyone research Tumor Necrosis Factor -a reducing diet or lifestyle. To my research it seems to be the key to all my aliments.
0 comments
Autoimmune Disorders and Rare
Mar 16, 2019Mar 2019

Posted by LadyAlyxandrea
Post op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out. Today was my moms birthday. I managed the hazardous trek up stairs to attend her birthday lunch. I ate a slice and a half of pizza...
1 comment
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by TaraMarshall
I have a regrettably list of diagnoses. Primary Immunodeficiency Disorders: Total IgA Deficiency and CVID. Autoimmune Disorders: Celiac Disease, Raynaud's Phenomena, and Lupus. Ehlers-Danlos Syndrome, IBS-C, Epilepsy, Autism, Depression, Anxiety, ...
2 comments
Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
This is good. It's still difficult and hard.
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by TaraMarshall
For us zebras and rainbow zebras. What helps, what hurts, and shoulders to cry on in the electronic sense, at least. We're tired, we hurt, and we're allowed to bitch about it!
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by sassygirl3869
Nice you started this-I have low immune system since surviving leukemia-in remission for 5 years. Diagnosed with fibromyalgia in my 40s-went into remission for awhile but now have Graft vs Host disease from bone marrow transplant. Limits use of my ...
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by SallyInStitches
Thank you. Gluten issues. Can't afford the cost of a diagnosis of celiac's even with insurance.
1 comment
Autoimmune Disorders and Rare
Sep 15, 2018Sep 2018

Posted by LadyAlyxandrea
Day 2 post-fair: Despite increasing narcotic and NSAIDS I am still unable to walk. Luckily I only have to work 2 days 3 shifts before my next half day. I've also hired an attorney for my disability claim. I wanted to wait until my genetic testing ...
0 comments
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
A good discussion on fibromyalgia from my favorite web doc, Zdogg
0 comments
Autoimmune Disorders and Rare
Feb 20, 2019Feb 2019

Posted by sassygirl3869
Feeling guilty on good days with chronic illness? Does anyone feel this way?
0 comments
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
Apr 18, 2018Apr 2018

Posted by Robert56
I am going to bed. My new g is to pull up lights on youtube and let it play all night LIVE .
2 comments
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by KKGator
Thanks for starting this group.
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by memorylikeasieve
Hiiiiiii. Any fellow narcoleptics in here?
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by Rugglesby
I don't have an auto immune problem myself, but many around me do, mother has lupus, an ex has schrogens, another ex has auto immune hepatitis, I went through transplant with her and a young friend has crohns..
2 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Corsaire
New to the site but am very interested in meeting like minded individuals.... my affliction is cushing's disease.
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by RobH86
I have ulcerative colitis. It isn't very fun. Much symathy for all members of this group. Stay happy and as healthy as you can
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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