Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Oldest Posts By TaraMarshall (4) (Page 8 / 9) Posts by anyone

Autoimmune Disorders and Rare
Mar 14, 2019Mar 2019

Posted by LadyAlyxandrea
Day 2: helppppp The abdominal pain wouldn't be so bad, if it were not for EVERY MUSCLE IN MY BODY feeling pulled. Muscles I didnt know i had hurt. Goodness gracious. Yesterday was alright, i felt pretty decent, but today holy moly no thank you. ...
2 comments
Autoimmune Disorders and Rare
Mar 16, 2019Mar 2019

Posted by LadyAlyxandrea
Post op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out. Today was my moms birthday. I managed the hazardous trek up stairs to attend her birthday lunch. I ate a slice and a half of pizza...
1 comment
Autoimmune Disorders and Rare
Mar 17, 2019Mar 2019

Posted by LadyAlyxandrea
Today was pretty good. I slept 8 hours and managed to stay awake the whole day without a nap. I cleaned my wounds and took a real shower, washed my hair and everything. That was a little too gunho, alas, and I nearly fainted in the shower. But I'm ...
3 comments
Autoimmune Disorders and Rare
Mar 19, 2019Mar 2019

Posted by LadyAlyxandrea
Day 6, not one person from work has asked me how I'm doing during my recovery. Not a single person. Today this makes me feel really sad and uncared for. When lisa has her surgery we all talked to her every day and made sure she was doing alright. ...
1 comment
Autoimmune Disorders and Rare
Mar 21, 2019Mar 2019

Posted by LadyAlyxandrea
Aaaaand I have staph.....?
3 comments
Autoimmune Disorders and Rare
Mar 22, 2019Mar 2019

Posted by LadyAlyxandrea
My new dentist is a cunning one. He didnt tell me until I was in the chair that we were doing a root canal today. He said he knew I'd try to put it off if I knew. He's very correct. I've never had a root canal before, and I'm already terrified of ...
1 comment
Autoimmune Disorders and Rare
Mar 23, 2019Mar 2019

Posted by LadyAlyxandrea
pain, infection, weird red scabs that look like scabies, unstable and bizarre sleeping patterns, hormone imbalance, absolutely ridiculous nightmares, root canal, only being able to be out for 3 hours before absolutely crashing... All this I can ...
2 comments
Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Managed to flip my sleep schedule back to normal, but now I'm constantly tired again and taking naps again. I think the infection is on the downward move, getting better, so maybe I'm just exhausted from fighting that and healing. oh and my new ...
1 comment
Autoimmune Disorders and Rare
Mar 25, 2019Mar 2019

Posted by LadyAlyxandrea
Tried googling support for non-religious terminally ill and all I get is a bunch of links for faith with dying and how faith is dying. What about those of us dying who don't have a faith? Where's our help?
1 comment
Autoimmune Disorders and Rare
Mar 26, 2019Mar 2019

Posted by LadyAlyxandrea
You've heard of Angels in the Outfield Well get ready for Almonds in my Icecream Ffs I cannot get a break
1 comment
Autoimmune Disorders and Rare
Mar 28, 2019Mar 2019

Posted by Lutherzme
Good article
1 comment
Autoimmune Disorders and Rare
Mar 29, 2019Mar 2019

Posted by LadyAlyxandrea
Yesterday for Dinner my brother and I went to McDonald's because ALL day i only wanted some freaking nugs. I went in starving because i knew we were going today and i was so excited for nugs And i ate 3 nugs and 5 fries and was almost sick from over...
2 comments
Autoimmune Disorders and Rare
Mar 31, 2019Mar 2019

Posted by LadyAlyxandrea
Goooooood morning! I slept 19 hours. I return to work tomorrow. I forsee I shall suffer lol
0 comments
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by LadyAlyxandrea
So two days ago I started my new anti-epileptic, topamax. I'm on a really really low dose so far so I haven't really noticed any changes. However for the last two days I've thought I've been losing my mind. Every soda I drank tasted flat and stale ...
1 comment
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by ponz111
I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move. If I lay down to try and sleep it sets in. And i will hit the bed very hard with my fist a few times which helps only a few seconds. ...
2 comments
Autoimmune Disorders and Rare
Apr 12, 2019Apr 2019

Posted by LadyAlyxandrea
It's been one month now since my surgery and my belly button is still infected. Worse now tonight my right bottom port started oozing pink foam. I'm going to go out on a limb and say that's not a good thing. Called the doctor and she made an ...
4 comments
Autoimmune Disorders and Rare
Apr 15, 2019Apr 2019

Posted by LadyAlyxandrea
So doc cleaned out my incisions and reglued them shut. Apparently for whatever reason those two just don't want to heal shut and that's why they keep getting infected. She hopes the glue will urge them to shut but if they don't start closing by next ...
1 comment
Autoimmune Disorders and Rare
Apr 21, 2019Apr 2019

Posted by Swanky
Hello, I'm wondering if anyone has heard of an experimental therapy for essentially stalling auto-immune disease called Helminthic Therapy? It's basically ingesting live parasites (e.g., worms) to provoke an infection that requires the immune system ...
0 comments
Autoimmune Disorders and Rare
May 4, 2019May 2019

Posted by LadyAlyxandrea
Well my belly button finally healed. My other two are starting to, i think. Took them long enough. Today is my last 12 hour shift and my last over night. Now on saturdays I'll work 7p-3a, which is much more doable for me since my usual bedtime is ...
0 comments
Autoimmune Disorders and Rare
May 10, 2019May 2019

Posted by AnonySchmoose
First post in this group: In 2017 I experienced a severe auto-immune flare up that lasted about 6 weeks. Eventually I was diagnosed with systemic lupus and put on a very expensive immune system suppressant. Have begun dodge triggers and find ...
0 comments
Autoimmune Disorders and Rare
May 10, 2019May 2019

Posted by LadyAlyxandrea
I'm cleaning the entire house today. Well, my half and the laundry and computer room (can we even call it a computer room anymore no one uses the computers and it's basically just become a storage area at the bottom of the stairs....) as well as ...
2 comments
Autoimmune Disorders and Rare
May 16, 2019May 2019

Posted by LadyAlyxandrea
Gonna be a LOOOOOONG day....insomnia attack from hell of course when i have a meeting in 6 hours with my supervisor and HR about my shift to part time and my disability application and then an appointment with my doctor. Plus side friday i get my ...
2 comments
Autoimmune Disorders and Rare
May 16, 2019May 2019

Posted by LadyAlyxandrea
My gp frustrates me sometimes. We work REALLY well together one on one, but when it comes to working together as a team on my issues that require working together with my entire healthcare team, he plugs his ears and goes "nananana let the diagnosing...
3 comments
Autoimmune Disorders and Rare
May 18, 2019May 2019

Posted by LadyAlyxandrea
I am currently working with Amber pharmacy out of Omaha with my humira program and I have to say, they are the most comprehensive and fully amazing pharmacy I've ever seen. All the pharmacies around here just fill meds but this place has coordinators...
0 comments
Autoimmune Disorders and Rare
May 27, 2019May 2019

Posted by LadyAlyxandrea
So I'm officially immunosuppressed. My secondary injection went well and we are already showing signs that my immune system is suppressing. That's exactly what we want, but I forgot a crucial variable when we decided on this endeavor. I am always in...
0 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

  • Top tags#disease #world #hell #sleep #reason #hope #video #god #friends #Diet #hello #mother #disorder #medicine #children #cancer #religion #hospital #evidence #birth #kids #animals #sin #religious #death #faith #drugs #shoes #drug #truth #anxiety #Atheist #religions #sex #addiction #weed #money #fear #soul #weather #dying #books #oil #skeptical #insane #relationship #evolution #parents #wife #cats ...

    Members 111Top

    Moderator

    Related Groups