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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Oldest Posts By TaraMarshall (4) (Page 5 / 9) Posts by anyone

Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
This is good. It's still difficult and hard.
1 comment
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by LadyAlyxandrea
Just another day in the life of an EDS patient Took one step and spraines my ankle
2 comments
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by dawilderone
Ulcerative colitis and psoriatic arthritis. Had no idea that UC was auto-immune until informed by Dr who diagnosed PA
1 comment
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by LadyAlyxandrea
After spraining My ankle I turned around two hours later and broke my toe. Y'all don't know how gross it is to set a toe bone. It made a squishing pop
2 comments
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by memorylikeasieve
Fuckin hell. Last night, while I was trying to sleep, my neck subluxed so badly that it made a loud, painful crack. No kind of pillow or arrangement of bedding seems to help keep my neck stable. >.<
4 comments
Autoimmune Disorders and Rare
Sep 9, 2018Sep 2018

Posted by ArtzyNerd
Hi all. I'm celiac and PCOS. Also have IgA deficiency
2 comments
Autoimmune Disorders and Rare
Sep 15, 2018Sep 2018

Posted by LadyAlyxandrea
Day 2 post-fair: Despite increasing narcotic and NSAIDS I am still unable to walk. Luckily I only have to work 2 days 3 shifts before my next half day. I've also hired an attorney for my disability claim. I wanted to wait until my genetic testing ...
0 comments
Autoimmune Disorders and Rare
Sep 17, 2018Sep 2018

Posted by RobH86
Does anyone have experience of CBD infused water. I Have ulcerative colitis, and read today that Coke a Cola is considering making a drink with the oil in it. The only product I have found available to me now is called love hemp water. Does it really...
2 comments
Autoimmune Disorders and Rare
Sep 19, 2018Sep 2018

Posted by LadyAlyxandrea
My pain is getting much worse. I've dropped out of taekwando because I just hurt too much now. Master says I can still participate the days I can and I don't have to do everything, I can sit out as much as I need, too. He's so kind and understanding ...
2 comments
Autoimmune Disorders and Rare
Oct 1, 2018Oct 2018

Posted by LadyAlyxandrea
I got the results from my cervical and brain MRI. Brain is hunky dory. Unremarkable. Odd, actually, given the huge amount of mental issues I have. My neck has gotten worse. Either he didn't have a really clear image of it a few years ago, or it ...
3 comments
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Initiation of Phase 2 Clinical Trial of Therapeutic Vaccine for Celiac Disease
1 comment
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Sign up for celiac trial
0 comments
Autoimmune Disorders and Rare
Oct 5, 2018Oct 2018

Posted by rogeralyn
Well, no big surprise here. Rules Are for Schmucks: Trashing Research:
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Fibromyalgia Relief
2 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Multiple Sclerosis Relief
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by RavenCT
How did I not know that pain tracking apps. now exist! This is just one - so do your own research folks.
0 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by SkyBlue_Crayon
Hi, I have psoriatic arthritis and Raynaud’s. Happy to connect with all of you.
5 comments
Autoimmune Disorders and Rare
Oct 13, 2018Oct 2018

Posted by sassygirl3869
Medical Reasons For Using Cannabis
1 comment
Shared from Health & Happiness
Oct 29, 2018Oct 2018

Posted by LadyAlyxandrea
So I finally have the date for MEETING my new neurosurgeon. November 12th. Hes supposedly a cervical specialist, but I'm incredibly nervous. Also he looks like Tim Curry so I'm even more nervous. Update Fuck that guy. Nope. Just cancelled my...
7 comments
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by LadyAlyxandrea
For today's game of "whats that weird random pain" I broke my big toe. Bad. That should be something you remember doing or have a vague idea how it happened. I was just sitting at my desk not doing anything and suddenly my toe hurt like something...
3 comments
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by DoDapper
My primary rare disorders are terminale filum TCS (tethered cord syndrome) and arachnoiditis. Not a rare disorder but related to my TCS correction, I have a T1-L3 fusion. Nice to see this group.
2 comments
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Going through the "memories" on Facebook and I realized it's just a journal of my disorder and chronic pain of me slowly evolving from "DRUGS ARE BAD!" to "Drugs are good, m'kay" In my defense I will not actually survive without my medicine, and I ...
2 comments
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Okay...Um....ummm So I bought a bunch of halloween discounted candy and in it was a bag of oreo candy bars. I ate a SHIT TON yesterday and today (not a good idea but they tasted so good!) They contain hazelnut. Something I didnt realize until just...
1 comment
Autoimmune Disorders and Rare
Nov 4, 2018Nov 2018

Posted by LadyAlyxandrea
The war on opioids has claimed yet another victim. Day after day I hear of another pain patient committing suicide, and today is no different except this time they committed suicide by cop, and it was my moms friend. Today, I felt a sort of ...
2 comments
Autoimmune Disorders and Rare
Nov 10, 2018Nov 2018

Posted by LadyAlyxandrea
Psst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)
4 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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