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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Oldest Posts By TaraMarshall (4) (Page 6 / 9) Posts by anyone

Autoimmune Disorders and Rare
Nov 11, 2018Nov 2018

Posted by LadyAlyxandrea
Okay now I am irritated. I am on a little immunosuppression therapy to try and control my mcas. (Mast cell activation syndrome) My coworkers and family are all well aware that I'm immunosuppressed. My coworker was at work with a sore throat for ...
3 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by LadyAlyxandrea
So I broke the small bones in my left foot and my toe about two months ago. I've not followed up with an ortho because my neck is more important to get fixed and I can only afford one major issue a year. Anyway my other foot the toenail on my big toe...
2 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by Dingodog
My wife was misdiagnosed with MS a few years back. She was 60, asymptomatic but had a plaque pattern on consistant with, but not exclusive to MS. They started he on an MS drug right away. I later learned the there is no medical therapy that will ...
0 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Lutherzme
Anybody else have to do this once a week?
5 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Haemish1
Any Hashimotos people here?
5 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by rogeralyn
About 2 weeks ago I asked Tara if I could post this here and have not heard a response so... I am starting a new site designed for people who have a chronic illness or condition and find it hard to start a relationship on other dating sites. It's ...
0 comments
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
A good discussion on fibromyalgia from my favorite web doc, Zdogg
0 comments
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
Adjusted my meds lately, and felt really really not half bad tonight. Especially after sleeping like 12 hours lol. I started taking an extended release muscle relaxer instead of my normal ones that knock me out, and started taking my oxy by halves ...
2 comments
Autoimmune Disorders and Rare
Nov 21, 2018Nov 2018

Posted by LadyAlyxandrea
Aaaaand I have pneumonia. Goodbye cruel world. Of all the bugs in the air I just had to get the pneumococcals. Bear in mind last time I had pneumonia I broke 2 ribs and split my abdominal muscles open. And that was before my immunosuppression. ...
1 comment
Autoimmune Disorders and Rare
Nov 22, 2018Nov 2018

Posted by rogeralyn
Based on feedback I've changed the name and web address of the previously announed new dating website for the chronically ill. It's now at:
0 comments
Autoimmune Disorders and Rare
Nov 30, 2018Nov 2018

Posted by itsmedammit
With any luck I will be finding a diagnosis in the near future. I have some sort of autoimmune thing going on, but not sure what. I hate, hate, hate having to spend time trying to figure this out but my pain compels me to do something. Saw a ...
3 comments
Autoimmune Disorders and Rare
Dec 2, 2018Dec 2018

Posted by sassygirl3869
18 Common Pet Peeves When You Have Chronic Illness
2 comments
Autoimmune Disorders and Rare
Dec 6, 2018Dec 2018

Posted by LadyAlyxandrea
If you ever feel like someone doesn't really listen to you, just remember I told my GP that I was being referred to a specialist for M.S. and he said "oh that's good"
1 comment
Autoimmune Disorders and Rare
Dec 7, 2018Dec 2018

Posted by LadyAlyxandrea
For the last 3 years or so I get severe, painful hiccups whenever I drink something really cold. These hiccups do not stop at all unless I take a cyclobenzaprine (muscle relaxant). They're actually more than hiccups, it's part of my dystonia. My ...
3 comments
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
0 comments
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
1 comment
Autoimmune Disorders and Rare
Dec 17, 2018Dec 2018

Posted by LadyAlyxandrea
Narcolepsy. Let me tell you out of ALL of the problems I have I think that one is the most inconvenient. Growing up I never understood just how powerful narcolepsy can be. I would complain about my mom always falling asleep "come on just get up and ...
2 comments
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments
Autoimmune Disorders and Rare
Dec 23, 2018Dec 2018

Posted by sassygirl3869
13 People Who Stood Up For Chronic Illness
1 comment
Autoimmune Disorders and Rare
Dec 28, 2018Dec 2018

Posted by LadyAlyxandrea
The holidays are almost over and honestly I couldn't be more relieved. Like most chronically ill people, the holidays cost about a thousand more spoons than I am allotted. It's really a challenge getting back this time. I've been having like a month ...
3 comments
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
How it feels going to the doctor
2 comments
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
Fun stuff! My brother and father have the flu. Bad. Plot twist my stupid brother sipped out of my pop the other day too. If you recall I'm immunosuppressed. And last night I woke up with my throat on fire. Now it's still tender but not at all as ...
1 comment
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by sassygirl3869
Should I go to emergency room with my chronic illness?
3 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by LadyAlyxandrea
Well this proved to be the most productive appointment ever. I finally got answers. Not good answers but answers finally. The nerve conduction test showed substantial deterioration of my radial nerves all from...guess where....my c5. Fuckin ...
3 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by LadyAlyxandrea
I've managed to sleep on and off for about 15 hours today. I'm actually in an uncharacteristically large amount of pain from the trip. It concerns me. My last three trips to Kansas city didn't hurt this bad. But I'm also fighting off a ...
2 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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