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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Oldest Posts By TaraMarshall (4) (Page 4 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
A gentle reminder
0 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
Just watched Brain on Fire, a true story about an auto immune disorder attacking the brain. It made me emotional to see how the doctors wanted to diagnose her incorrectly because it was easier. Shame that we live in pain, often misdiagnosed because ...
3 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victories: I washed the dishes and remembered my lunch today
1 comment
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victory Got my tags today. (Cost 200 dollars more than they were supposed to) Budgeted with 'help' from my slave driver I mean mother. She is ridiculous. Somehow after she budgeted I had 5 dollars left for groceries for 2 weeks, and had me ...
1 comment
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by ColoradoSass
So happy to find this group. I have Hashimoto's disease and now I have some sort of "unidentified autoimmune disease". It acts like Celiacs but doesn't have the same genetic markers as Celiacs so they don't know what it is. The struggle is real. ...
4 comments
Autoimmune Disorders and Rare
Jul 13, 2018Jul 2018

Posted by StevenB83
So what exactly is an anti inflammatory diet? I thought meat was an inflammatory.
3 comments
Autoimmune Disorders and Rare
Jul 13, 2018Jul 2018

Posted by LadyAlyxandrea
I've a lengthy to do list today, despite wanting to spend it all in bed. So far I'm doing good. Frequent breaks, doing what I can do sitting down. I still need to get the trash together so my brother can take it out for me (too hard to take it ...
2 comments
Autoimmune Disorders and Rare
Jul 14, 2018Jul 2018

Posted by Demonica29
Hello and gentle hugs all around. I have fibromyalgia and arthritis in my neck. Cancer and chemo left me with permanent peripheral neuropathy and horrible panic attacks. But hell, I do t have cancer anymore.
3 comments
Autoimmune Disorders and Rare
Jul 25, 2018Jul 2018

Posted by rogeralyn
Thought this was interesting in general. "These 9 behaviors could cut your dementia risk by 35 percent"
1 comment
Autoimmune Disorders and Rare
Jul 30, 2018Jul 2018

Posted by memorylikeasieve
Little victory: to-day I made a homemade barbecue sauce despite awful back pain. It entailed over an hour of standing at a stove in arch support shoes and a back brace, but I did it!
2 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by BookDeath
I'm getting VERY tired tired of having to explain to each new doctor that no, I don't IBS (irritable bowel syndrome), bad enough though that is. I have collagenous colitis, which a form of INFLAMMATORY BOWEL DISEASE, akin to Crohn's and the like. It...
2 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by GreatNani
Anyone here with EDS?
4 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by LadyAlyxandrea
I fell down on the driveway. Both ankles, knees, palms, wrists, and shoulders are very displeased. Some nice scratches and bruises but nothing broke, thanks to the fact that I'm made of rubber.
4 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by LadyAlyxandrea
Behold friends! My feet after one hour of cooking. Notice the soft ball sized ankle swelling, the horrific spasm that has my toes locked in a twisted position. Ahhhh multifocal dystonia is so much FUN. Freaking EDS. when people ask why I need a ...
1 comment
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by CarolinaGirl60
I’m in the hospital. Had a gastroparesis flare plus a nasty virus. Feeling MUCH better today; might go home tomorrow.
6 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by LadyAlyxandrea
This stuff is mind blowing. I typically have very little trust in homeopathy but I rubbed this on my neck and I can't remember it ever being this uninflammed. It's so amazing I want to bathe in it
3 comments
Autoimmune Disorders and Rare
Aug 15, 2018Aug 2018

Posted by LadyAlyxandrea
Monday I was given a steroid shot for an allergy attack. Normally this would help my pain substantially. However the last three days I've hurt so bad it's like triple the normal levels. Now either the steroids didn't work, or they're working and ...
3 comments
Autoimmune Disorders and Rare
Aug 16, 2018Aug 2018

Posted by JesseBoren
They finally put a label on my illness after 18 years of searching, Cramping fasciculation syndrome.
5 comments
Autoimmune Disorders and Rare
Aug 17, 2018Aug 2018

Posted by BookDeath
I'm getting EXTREMELY tired of having to be the one to go to my neuro to inform them of diagnoses: thalamic pain syndrome; pseudobulbar affect; etc. I should have been told these types of things were headed my way potentially, not the other way ...
0 comments
Autoimmune Disorders and Rare
Aug 18, 2018Aug 2018

Posted by CarolinaGirl60
???Sigh. My kids showed up today for an ‘intervention’. My going to the ER last weekend, then being admitted, was apparently too much. Too much what, I’m not sure. My son tells me I’m depressed and that’s why I vomit and stay in bed all ...
5 comments
Autoimmune Disorders and Rare
Aug 19, 2018Aug 2018

Posted by Alimacbean
My mind so badly wants to get in shape and lose this 25 pounds weighing so heavily on me, in more ways than one. But my body is exhausted at the end of the day and longs to rest on the couch counting the minutes until it's bed time. I miss my ...
5 comments
Autoimmune Disorders and Rare
Aug 20, 2018Aug 2018

Posted by LadyAlyxandrea
My short term memory is so bad. I put like 4 coats of deodorant on in the morning because I forget whether or not I've put it on. I constantly forget to take my lunch to work or take my lunch box home after work. I forget my wallet at least once a ...
6 comments
Autoimmune Disorders and Rare
Aug 22, 2018Aug 2018

Posted by LadyAlyxandrea
Aaaand I've developed cervical vertigo. It's kinda debilitating. Like more than pain. Even laying down it feels like I just got off a spiny ride at the fair. It makes me nauseated and my head feels like it might roll off. I can stand and walk and ...
2 comments
Autoimmune Disorders and Rare
Aug 23, 2018Aug 2018

Posted by Lutherzme
Hi there. I've been fighting polymyositis for over 10 years. It tore up my lungs in about 8 and Ive been lucky enough to receive a double lung transplant. 3 Plus years since and I'm still truckin'! ScienceSaves BetterLivingThruChemistry
2 comments
Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
It's not fair that I have all the suffering of Crohn's disease and none of the weightloss. If I have to suffer I'd rather it have one silver lining
2 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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