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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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RecentPosts By TaraMarshall (4) (Page 4 / 9) Posts by anyone

Autoimmune Disorders and Rare
Nov 21, 2018Nov 2018

Posted by LadyAlyxandrea
Aaaaand I have pneumonia. Goodbye cruel world. Of all the bugs in the air I just had to get the pneumococcals. Bear in mind last time I had pneumonia I broke 2 ribs and split my abdominal muscles open. And that was before my immunosuppression. ...
1 comment
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
Adjusted my meds lately, and felt really really not half bad tonight. Especially after sleeping like 12 hours lol. I started taking an extended release muscle relaxer instead of my normal ones that knock me out, and started taking my oxy by halves ...
2 comments
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
A good discussion on fibromyalgia from my favorite web doc, Zdogg
0 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by rogeralyn
About 2 weeks ago I asked Tara if I could post this here and have not heard a response so... I am starting a new site designed for people who have a chronic illness or condition and find it hard to start a relationship on other dating sites. It's ...
0 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Haemish1
Any Hashimotos people here?
5 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Lutherzme
Anybody else have to do this once a week?
5 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by Dingodog
My wife was misdiagnosed with MS a few years back. She was 60, asymptomatic but had a plaque pattern on consistant with, but not exclusive to MS. They started he on an MS drug right away. I later learned the there is no medical therapy that will ...
0 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by LadyAlyxandrea
So I broke the small bones in my left foot and my toe about two months ago. I've not followed up with an ortho because my neck is more important to get fixed and I can only afford one major issue a year. Anyway my other foot the toenail on my big toe...
2 comments
Autoimmune Disorders and Rare
Nov 11, 2018Nov 2018

Posted by LadyAlyxandrea
Okay now I am irritated. I am on a little immunosuppression therapy to try and control my mcas. (Mast cell activation syndrome) My coworkers and family are all well aware that I'm immunosuppressed. My coworker was at work with a sore throat for ...
3 comments
Autoimmune Disorders and Rare
Nov 10, 2018Nov 2018

Posted by LadyAlyxandrea
Psst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)
4 comments
Autoimmune Disorders and Rare
Nov 4, 2018Nov 2018

Posted by LadyAlyxandrea
The war on opioids has claimed yet another victim. Day after day I hear of another pain patient committing suicide, and today is no different except this time they committed suicide by cop, and it was my moms friend. Today, I felt a sort of ...
2 comments
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Okay...Um....ummm So I bought a bunch of halloween discounted candy and in it was a bag of oreo candy bars. I ate a SHIT TON yesterday and today (not a good idea but they tasted so good!) They contain hazelnut. Something I didnt realize until just...
1 comment
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Going through the "memories" on Facebook and I realized it's just a journal of my disorder and chronic pain of me slowly evolving from "DRUGS ARE BAD!" to "Drugs are good, m'kay" In my defense I will not actually survive without my medicine, and I ...
2 comments
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by DoDapper
My primary rare disorders are terminale filum TCS (tethered cord syndrome) and arachnoiditis. Not a rare disorder but related to my TCS correction, I have a T1-L3 fusion. Nice to see this group.
2 comments
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by LadyAlyxandrea
For today's game of "whats that weird random pain" I broke my big toe. Bad. That should be something you remember doing or have a vague idea how it happened. I was just sitting at my desk not doing anything and suddenly my toe hurt like something...
3 comments
Shared from Health & Happiness
Oct 29, 2018Oct 2018

Posted by LadyAlyxandrea
So I finally have the date for MEETING my new neurosurgeon. November 12th. Hes supposedly a cervical specialist, but I'm incredibly nervous. Also he looks like Tim Curry so I'm even more nervous. Update Fuck that guy. Nope. Just cancelled my...
7 comments
Autoimmune Disorders and Rare
Oct 13, 2018Oct 2018

Posted by sassygirl3869
Medical Reasons For Using Cannabis
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by SkyBlue_Crayon
Hi, I have psoriatic arthritis and Raynaud’s. Happy to connect with all of you.
5 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by RavenCT
How did I not know that pain tracking apps. now exist! This is just one - so do your own research folks.
0 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Multiple Sclerosis Relief
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Fibromyalgia Relief
2 comments
Autoimmune Disorders and Rare
Oct 5, 2018Oct 2018

Posted by rogeralyn
Well, no big surprise here. Rules Are for Schmucks: Trashing Research:
1 comment
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Sign up for celiac trial
0 comments
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Initiation of Phase 2 Clinical Trial of Therapeutic Vaccine for Celiac Disease
1 comment
Autoimmune Disorders and Rare
Oct 1, 2018Oct 2018

Posted by LadyAlyxandrea
I got the results from my cervical and brain MRI. Brain is hunky dory. Unremarkable. Odd, actually, given the huge amount of mental issues I have. My neck has gotten worse. Either he didn't have a really clear image of it a few years ago, or it ...
3 comments

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Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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