Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

RecentPosts By TaraMarshall (4) (Page 3 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jan 22, 2019Jan 2019

Posted by LadyAlyxandrea
When it comes to anything that you could possibly have an opinion on, I'm very loud and poignant, but in 6 years I've not said a word about vaxxers or antivaxxers. I have found that it is a hard subject for me to make an opinion on. On the one hand...
3 comments
Autoimmune Disorders and Rare
Jan 19, 2019Jan 2019

Posted by RavenCT
Truth,,,,,
3 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by LadyAlyxandrea
Oh give me strength because I am about to fucking throat punch two of my aunts. They constantly bully, exclude, and talk shit on my mom and of course the petty disrespectful jabs go into full fucking effect while we are desperately trying to figure ...
3 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by Nunulady
The Science of Stress and How Our Emotions Affect Our Susceptibility to Burnout and Disease . I hope you can access this. It's an article from Brain Pickings.
1 comment
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
HUZZAH I am finally getting my ovary and fallopian tubes removed! Without no husbands permission! How bout that.
1 comment
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
I'm starting to get irritated again. Though maybe I'm over reacting a bit due to having been awake 30 hours and my pain is like 50% worse today than ever. I finally got answers to a few of my issues (i.e., dual brachial plexus injuries, severe ...
0 comments
Autoimmune Disorders and Rare
Jan 11, 2019Jan 2019

Posted by Alimacbean
Could be a game changer.
3 comments
Autoimmune Disorders and Rare
Jan 9, 2019Jan 2019

Posted by LadyAlyxandrea
I need to rant. Crps comes with debilitating brain fog. I'm talking Alzheimer's level forgetfulness. Unfortunately my mother can't seem to comprehend this, and is constantly berating me and insulting me and talking down to me. Today I forgot to ...
1 comment
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by sassygirl3869
Chronic Illness Makes it Hurtful to Look at Social Media?
5 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by LadyAlyxandrea
I've managed to sleep on and off for about 15 hours today. I'm actually in an uncharacteristically large amount of pain from the trip. It concerns me. My last three trips to Kansas city didn't hurt this bad. But I'm also fighting off a ...
2 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by LadyAlyxandrea
Well this proved to be the most productive appointment ever. I finally got answers. Not good answers but answers finally. The nerve conduction test showed substantial deterioration of my radial nerves all from...guess where....my c5. Fuckin ...
3 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by sassygirl3869
Should I go to emergency room with my chronic illness?
3 comments
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
Fun stuff! My brother and father have the flu. Bad. Plot twist my stupid brother sipped out of my pop the other day too. If you recall I'm immunosuppressed. And last night I woke up with my throat on fire. Now it's still tender but not at all as ...
1 comment
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
How it feels going to the doctor
2 comments
Autoimmune Disorders and Rare
Dec 28, 2018Dec 2018

Posted by LadyAlyxandrea
The holidays are almost over and honestly I couldn't be more relieved. Like most chronically ill people, the holidays cost about a thousand more spoons than I am allotted. It's really a challenge getting back this time. I've been having like a month ...
3 comments
Autoimmune Disorders and Rare
Dec 23, 2018Dec 2018

Posted by sassygirl3869
13 People Who Stood Up For Chronic Illness
1 comment
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments
Autoimmune Disorders and Rare
Dec 17, 2018Dec 2018

Posted by LadyAlyxandrea
Narcolepsy. Let me tell you out of ALL of the problems I have I think that one is the most inconvenient. Growing up I never understood just how powerful narcolepsy can be. I would complain about my mom always falling asleep "come on just get up and ...
2 comments
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
1 comment
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
0 comments
Autoimmune Disorders and Rare
Dec 7, 2018Dec 2018

Posted by LadyAlyxandrea
For the last 3 years or so I get severe, painful hiccups whenever I drink something really cold. These hiccups do not stop at all unless I take a cyclobenzaprine (muscle relaxant). They're actually more than hiccups, it's part of my dystonia. My ...
3 comments
Autoimmune Disorders and Rare
Dec 6, 2018Dec 2018

Posted by LadyAlyxandrea
If you ever feel like someone doesn't really listen to you, just remember I told my GP that I was being referred to a specialist for M.S. and he said "oh that's good"
1 comment
Autoimmune Disorders and Rare
Dec 2, 2018Dec 2018

Posted by sassygirl3869
18 Common Pet Peeves When You Have Chronic Illness
2 comments
Autoimmune Disorders and Rare
Nov 30, 2018Nov 2018

Posted by itsmedammit
With any luck I will be finding a diagnosis in the near future. I have some sort of autoimmune thing going on, but not sure what. I hate, hate, hate having to spend time trying to figure this out but my pain compels me to do something. Saw a ...
3 comments
Autoimmune Disorders and Rare
Nov 22, 2018Nov 2018

Posted by rogeralyn
Based on feedback I've changed the name and web address of the previously announed new dating website for the chronically ill. It's now at:
0 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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