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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Commented Posts By TaraMarshall (4) (Page 2 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jun 27, 2019Jun 2019

Posted by PiperMckenna
I'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha
5 comments
Autoimmune Disorders and Rare
Mar 11, 2019Mar 2019

Posted by LadyAlyxandrea
Behold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days. One day left of work. The doctor took me off 90% of my pain meds before surgery, to thicken up my blood. This has been a very horrifying time. I've discovered ...
5 comments
Autoimmune Disorders and Rare
Apr 12, 2019Apr 2019

Posted by LadyAlyxandrea
It's been one month now since my surgery and my belly button is still infected. Worse now tonight my right bottom port started oozing pink foam. I'm going to go out on a limb and say that's not a good thing. Called the doctor and she made an ...
4 comments
Autoimmune Disorders and Rare
Mar 2, 2019Mar 2019

Posted by LadyAlyxandrea
Still alive!!! I know many of you (like 2) have been wondering where I've been. Truthfully I discovered the video game I used to play like 15 years ago came out on mobile so.... Anyway, I am having surgery on the 13th. Passed my preop appointment ...
4 comments
Autoimmune Disorders and Rare
Jan 23, 2019Jan 2019

Posted by LadyAlyxandrea
I fell on the ice yesterday. Yep. Both legs are completely out of commission. I now have no working arms, nor legs. I'm just an emotional talking paperweight
4 comments
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by caraE
Hi, Does any one know about bdp(boderline personality) How can I manage it ??
4 comments
Autoimmune Disorders and Rare
Nov 10, 2018Nov 2018

Posted by LadyAlyxandrea
Psst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)
4 comments
Autoimmune Disorders and Rare
Mar 22, 2018Mar 2018

Posted by LadyAlyxandrea
Tomorrow I'm going to ask my specialist about getting a handicap placard. My GP ks I'm exaggerating my need for it. Do you have any suggestions on how to ask for it without coming off as just lazy?
4 comments
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by memorylikeasieve
Fuckin hell. Last night, while I was trying to sleep, my neck subluxed so badly that it made a loud, painful crack. No kind of pillow or arrangement of bedding seems to help keep my neck stable. >.<
4 comments
Autoimmune Disorders and Rare
Apr 4, 2018Apr 2018

Posted by LadyAlyxandrea
Every time
4 comments
Autoimmune Disorders and Rare
Jun 17, 2018Jun 2018

Posted by BookDeath
Hello, all. I have: Post-stroke syndrome (now rearing its ugly head); collagenous colitis (a form of inflammatory bowel disease); epilepsy; and osteoporosis, mild CP, AND an AVN. Do I fit this group?
4 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by LadyAlyxandrea
I fell down on the driveway. Both ankles, knees, palms, wrists, and shoulders are very displeased. Some nice scratches and bruises but nothing broke, thanks to the fact that I'm made of rubber.
4 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by GreatNani
Anyone here with EDS?
4 comments
Autoimmune Disorders and Rare
Jul 9, 2018Jul 2018

Posted by LadyAlyxandrea
My little victory today is that tomorrow I'll reach level 8 finally. That's all I really got today, but I'll try to make tomorrow a little better
4 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by ColoradoSass
So happy to find this group. I have Hashimoto's disease and now I have some sort of "unidentified autoimmune disease". It acts like Celiacs but doesn't have the same genetic markers as Celiacs so they don't know what it is. The struggle is real. ...
4 comments
Autoimmune Disorders and Rare
Jul 10, 2018Jul 2018

Posted by Sydland
Hi everyone. I just need to vent. I’m a Type 1 diabetic with a pancreas that quit working, celiac, and Hashimotos. The past two weeks my hair started falling out in huge handfuls in the shower. It’s gone from being really thick to thin in ...
4 comments
Autoimmune Disorders and Rare
Apr 22, 2018Apr 2018

Posted by CarolinaGirl60
Greetings, earthlings. I have fibromyalgia, gastroparesis...and suspect that I have dysautonomia. Chronic pain—that’s one way to put it! I it constant pain?.
4 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
I miss the simple things about not having chronic pain. I miss cute shoes. I miss being able to stub my toe, say ouch, and get on with my day. I miss standing up straight after sitting down. I miss going to theme parks and walking the whole day. I ...
4 comments
Autoimmune Disorders and Rare
Apr 26, 2018Apr 2018

Posted by JustADreamer
September 12, 1993 is when my life changed. Single mom of two boys, ages 2 and 4. I got Guillain Barre Syndrome. Was in Sarasota Memorial Hospital for six months. Being an introvert and disabled has made things a bit harder. Recently, dated a friend....
4 comments
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by LadyAlyxandrea
Well this proved to be the most productive appointment ever. I finally got answers. Not good answers but answers finally. The nerve conduction test showed substantial deterioration of my radial nerves all from...guess where....my c5. Fuckin ...
3 comments
Autoimmune Disorders and Rare
Jul 4, 2018Jul 2018

Posted by LadyAlyxandrea
Anyone else's skin do this with even a slight touch? I'm a human etcha-sketch
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Alimacbean
I've been working with an integrative doctor to find the source of my fibromyalgia. We've run a million tests and I've taken a butt load of supplements. No improvement. I'm worn down and at my witt's end. I really thought I'd have found an answer, ...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Drsmash253
Hey everybody just spotted this group I believe I qualify as a member since I have rheumatoid arthritis I just spent three years working my way out of a wheelchair I still take Methotrexate injections but I'm slowly beating this damn thing
3 comments
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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