Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Commented Posts By TaraMarshall (4) (Page 3 / 9) Posts by anyone

Autoimmune Disorders and Rare
Apr 18, 2018Apr 2018

Posted by Robert56
Taking med right now including weed. Helps with my neurological pain in my legs . I was bitten late sept 2008.
3 comments
Autoimmune Disorders and Rare
Apr 23, 2018Apr 2018

Posted by LadyAlyxandrea
Explaining proprioception disorders to children and non-medically inclined people: "Why do you wear those weird gloves?" "Sometimes my fingers or hands wander off and they help me to know where they are."
3 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by CarolinaGirl60
Gastroparesis is now in month 10 of serious flare(last bad one lasted nearly two years). I also have fibromyalgia and a few other things to deal with. In the past month, I could fit the amount of solid food I ate into a sandwich ziplock...but no ...
3 comments
Autoimmune Disorders and Rare
Jun 20, 2018Jun 2018

Posted by rogeralyn
Having one of those days where I want to give in and scream! Not very manly I know but don't care right now.
3 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by CarolinaGirl60
I had trigger point injections today in my upper back/neck. In a few days, I’ll be glad. Right now though, may I just say::: OW! Fucking OW!!!!
3 comments
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jul 4, 2018Jul 2018

Posted by LadyAlyxandrea
Anyone else's skin do this with even a slight touch? I'm a human etcha-sketch
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Alimacbean
I've been working with an integrative doctor to find the source of my fibromyalgia. We've run a million tests and I've taken a butt load of supplements. No improvement. I'm worn down and at my witt's end. I really thought I'd have found an answer, ...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Drsmash253
Hey everybody just spotted this group I believe I qualify as a member since I have rheumatoid arthritis I just spent three years working my way out of a wheelchair I still take Methotrexate injections but I'm slowly beating this damn thing
3 comments
Autoimmune Disorders and Rare
Jul 10, 2018Jul 2018

Posted by LadyAlyxandrea
Little Victory time! I went shopping a while ago, got some food. Came home and cooked some food and two angel food cakes (I call them faithless food cakes lol).
3 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
Just watched Brain on Fire, a true story about an auto immune disorder attacking the brain. It made me emotional to see how the doctors wanted to diagnose her incorrectly because it was easier. Shame that we live in pain, often misdiagnosed because ...
3 comments
Autoimmune Disorders and Rare
Jul 13, 2018Jul 2018

Posted by StevenB83
So what exactly is an anti inflammatory diet? I thought meat was an inflammatory.
3 comments
Autoimmune Disorders and Rare
Jul 14, 2018Jul 2018

Posted by Demonica29
Hello and gentle hugs all around. I have fibromyalgia and arthritis in my neck. Cancer and chemo left me with permanent peripheral neuropathy and horrible panic attacks. But hell, I do t have cancer anymore.
3 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by LadyAlyxandrea
This stuff is mind blowing. I typically have very little trust in homeopathy but I rubbed this on my neck and I can't remember it ever being this uninflammed. It's so amazing I want to bathe in it
3 comments
Autoimmune Disorders and Rare
Aug 15, 2018Aug 2018

Posted by LadyAlyxandrea
Monday I was given a steroid shot for an allergy attack. Normally this would help my pain substantially. However the last three days I've hurt so bad it's like triple the normal levels. Now either the steroids didn't work, or they're working and ...
3 comments
Autoimmune Disorders and Rare
Oct 1, 2018Oct 2018

Posted by LadyAlyxandrea
I got the results from my cervical and brain MRI. Brain is hunky dory. Unremarkable. Odd, actually, given the huge amount of mental issues I have. My neck has gotten worse. Either he didn't have a really clear image of it a few years ago, or it ...
3 comments
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by LadyAlyxandrea
For today's game of "whats that weird random pain" I broke my big toe. Bad. That should be something you remember doing or have a vague idea how it happened. I was just sitting at my desk not doing anything and suddenly my toe hurt like something...
3 comments
Autoimmune Disorders and Rare
Nov 11, 2018Nov 2018

Posted by LadyAlyxandrea
Okay now I am irritated. I am on a little immunosuppression therapy to try and control my mcas. (Mast cell activation syndrome) My coworkers and family are all well aware that I'm immunosuppressed. My coworker was at work with a sore throat for ...
3 comments
Autoimmune Disorders and Rare
Nov 30, 2018Nov 2018

Posted by itsmedammit
With any luck I will be finding a diagnosis in the near future. I have some sort of autoimmune thing going on, but not sure what. I hate, hate, hate having to spend time trying to figure this out but my pain compels me to do something. Saw a ...
3 comments
Autoimmune Disorders and Rare
Dec 7, 2018Dec 2018

Posted by LadyAlyxandrea
For the last 3 years or so I get severe, painful hiccups whenever I drink something really cold. These hiccups do not stop at all unless I take a cyclobenzaprine (muscle relaxant). They're actually more than hiccups, it's part of my dystonia. My ...
3 comments
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments
Autoimmune Disorders and Rare
Dec 28, 2018Dec 2018

Posted by LadyAlyxandrea
The holidays are almost over and honestly I couldn't be more relieved. Like most chronically ill people, the holidays cost about a thousand more spoons than I am allotted. It's really a challenge getting back this time. I've been having like a month ...
3 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by sassygirl3869
Should I go to emergency room with my chronic illness?
3 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by LadyAlyxandrea
Well this proved to be the most productive appointment ever. I finally got answers. Not good answers but answers finally. The nerve conduction test showed substantial deterioration of my radial nerves all from...guess where....my c5. Fuckin ...
3 comments
Autoimmune Disorders and Rare
Mar 21, 2019Mar 2019

Posted by LadyAlyxandrea
Aaaaand I have staph.....?
3 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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