Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Liked Posts By TaraMarshall (4) (Page 2 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
Just watched Brain on Fire, a true story about an auto immune disorder attacking the brain. It made me emotional to see how the doctors wanted to diagnose her incorrectly because it was easier. Shame that we live in pain, often misdiagnosed because ...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by LadyAlyxandrea
I want to start a daily ritual here. Id like as many of you to participate as you can and feel able to. I'm tired of pushing myself to try to meet the unrealistic expectations of others. Not everyone can overcome their disabilities through sheer ...
6 comments
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by nutrition_nerd
How many of you have heard of Adverse Childhood Experiences? There was a study conducted by the CDC and Kaiser Permanente, about the effect of childhood trauma on the body. The research is astounding. People with >4 Adverse Childhood Experiences had ...
7 comments
Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by JesseBoren
Went to the hematologist today, she says it looks like I do have polycythemia vera. Go back in 10 days for final results, if those aren't definitive I will have to get a bone marrow biopsy. Luckily it's very treatable although it's called a blood ...
1 comment
Autoimmune Disorders and Rare
Jun 18, 2018Jun 2018

Posted by MusicLvr
Hello, I'm new here. I have fibro, DDD, arthritis, joint hypermobility, among some other things. Saw a new rheumy today, bc mine no longer takes my ins. The new one was awful. Treated me like a junkie, wouldn't let me finish a sentence. Looking ...
5 comments
Autoimmune Disorders and Rare
Jun 17, 2018Jun 2018

Posted by BookDeath
Hello, all. I have: Post-stroke syndrome (now rearing its ugly head); collagenous colitis (a form of inflammatory bowel disease); epilepsy; and osteoporosis, mild CP, AND an AVN. Do I fit this group?
4 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by JesseBoren
I have been diagnosed with a few rare diseases, some right some wrong. I've seen over 30 doctors in the last 18 years, apparently I'm a medical mystery. The first one I got was Trigeminal Neuralgia which lasted 6 months, thankfully I have had no ...
5 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by CarolinaGirl60
Gastroparesis is now in month 10 of serious flare(last bad one lasted nearly two years). I also have fibromyalgia and a few other things to deal with. In the past month, I could fit the amount of solid food I ate into a sandwich ziplock...but no ...
3 comments
Autoimmune Disorders and Rare
Jun 3, 2018Jun 2018

Posted by rogeralyn
Although this is about introducing the new Bionic pancreas, the first 9 min's are probably the best explanation of what it's like to live with T1 diabetes. ://youtu.be/bZXmfTxd79Q
1 comment
Autoimmune Disorders and Rare
Apr 25, 2018Apr 2018

Posted by Alimacbean
I was told today that I have extremely low vitamin D. Getting me on a supplement. Hoping this is what is the cause of my fibromyalgia. It's not very common to have vitamin D levels checked and the symptoms of deficiency mimic fibromyalgia symptoms.
7 comments
Autoimmune Disorders and Rare
Apr 22, 2018Apr 2018

Posted by LadyAlyxandrea
I'm allergic to tylenol and it is ridiculous. You guys have any idea how many things have tylenol in them? When I explain to the doctors what tylenol does to me, they shrug it off and say it isn't a true allergy, and act like I exaggerate. I don't ...
5 comments
Autoimmune Disorders and Rare
Apr 4, 2018Apr 2018

Posted by LadyAlyxandrea
Every time
4 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments
Autoimmune Disorders and Rare
Apr 8, 2018Apr 2018

Posted by Melbates
Body is a temple
3 comments
Autoimmune Disorders and Rare
Mar 16, 2019Mar 2019

Posted by LadyAlyxandrea
Post op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out. Today was my moms birthday. I managed the hazardous trek up stairs to attend her birthday lunch. I ate a slice and a half of pizza...
1 comment
Autoimmune Disorders and Rare
Mar 2, 2019Mar 2019

Posted by LadyAlyxandrea
Still alive!!! I know many of you (like 2) have been wondering where I've been. Truthfully I discovered the video game I used to play like 15 years ago came out on mobile so.... Anyway, I am having surgery on the 13th. Passed my preop appointment ...
4 comments
Autoimmune Disorders and Rare
Jan 23, 2019Jan 2019

Posted by LadyAlyxandrea
I fell on the ice yesterday. Yep. Both legs are completely out of commission. I now have no working arms, nor legs. I'm just an emotional talking paperweight
4 comments
Autoimmune Disorders and Rare
May 10, 2019May 2019

Posted by LadyAlyxandrea
I'm cleaning the entire house today. Well, my half and the laundry and computer room (can we even call it a computer room anymore no one uses the computers and it's basically just become a storage area at the bottom of the stairs....) as well as ...
2 comments
Autoimmune Disorders and Rare
May 27, 2019May 2019

Posted by LadyAlyxandrea
So I'm officially immunosuppressed. My secondary injection went well and we are already showing signs that my immune system is suppressing. That's exactly what we want, but I forgot a crucial variable when we decided on this endeavor. I am always in...
0 comments
Autoimmune Disorders and Rare
Jan 19, 2019Jan 2019

Posted by RavenCT
Truth,,,,,
3 comments
Autoimmune Disorders and Rare
Jun 8, 2019Jun 2019

Posted by LadyAlyxandrea
I met with HR and was approved to begin part time as of august 1st. I also met with my new disability lawyer and he said my case will be difficult because of my age but he is certain i can win. Now comes the challenge: The judge my lawyer wants to ...
3 comments
Autoimmune Disorders and Rare
Jun 19, 2019Jun 2019

Posted by LadyAlyxandrea
I didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts. Today i got multiple sets of stitches in my shoulder and my thigh. Dermatology removed some deep benign skin tumors to send to ...
1 comment
Autoimmune Disorders and Rare
Feb 10, 2019Feb 2019

Posted by LadyAlyxandrea
Oh non-existent lord give me strength. My aunt who is an RN is now a naturopathic homeopathic pyramid scheme smuck. I posted about how this new medicine gave me RLS. Suddenly she's linking me to veggies that counter RLS and teas and essential oils....
3 comments
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by ponz111
I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move. If I lay down to try and sleep it sets in. And i will hit the bed very hard with my fist a few times which helps only a few seconds. ...
2 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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