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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Liked Posts By TaraMarshall (4) (Page 8 / 9) Posts by anyone

Autoimmune Disorders and Rare
Sep 19, 2018Sep 2018

Posted by LadyAlyxandrea
My pain is getting much worse. I've dropped out of taekwando because I just hurt too much now. Master says I can still participate the days I can and I don't have to do everything, I can sit out as much as I need, too. He's so kind and understanding ...
2 comments
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Initiation of Phase 2 Clinical Trial of Therapeutic Vaccine for Celiac Disease
1 comment
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by RavenCT
How did I not know that pain tracking apps. now exist! This is just one - so do your own research folks.
0 comments
Autoimmune Disorders and Rare
Oct 13, 2018Oct 2018

Posted by sassygirl3869
Medical Reasons For Using Cannabis
1 comment
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Going through the "memories" on Facebook and I realized it's just a journal of my disorder and chronic pain of me slowly evolving from "DRUGS ARE BAD!" to "Drugs are good, m'kay" In my defense I will not actually survive without my medicine, and I ...
2 comments
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Okay...Um....ummm So I bought a bunch of halloween discounted candy and in it was a bag of oreo candy bars. I ate a SHIT TON yesterday and today (not a good idea but they tasted so good!) They contain hazelnut. Something I didnt realize until just...
1 comment
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Haemish1
Any Hashimotos people here?
5 comments
Autoimmune Disorders and Rare
Dec 11, 2018Dec 2018

Posted by LadyAlyxandrea
I've felt real out of it today all day and just proved it by going to soak in a nice warm tub and forgetting to undress. That's a new one.
1 comment
Autoimmune Disorders and Rare
Dec 17, 2018Dec 2018

Posted by LadyAlyxandrea
Narcolepsy. Let me tell you out of ALL of the problems I have I think that one is the most inconvenient. Growing up I never understood just how powerful narcolepsy can be. I would complain about my mom always falling asleep "come on just get up and ...
2 comments
Autoimmune Disorders and Rare
Dec 28, 2018Dec 2018

Posted by LadyAlyxandrea
The holidays are almost over and honestly I couldn't be more relieved. Like most chronically ill people, the holidays cost about a thousand more spoons than I am allotted. It's really a challenge getting back this time. I've been having like a month ...
3 comments
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by KKGator
Thanks for starting this group.
1 comment
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by memorylikeasieve
Hiiiiiii. Any fellow narcoleptics in here?
1 comment
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by TaraMarshall
I have a regrettably list of diagnoses. Primary Immunodeficiency Disorders: Total IgA Deficiency and CVID. Autoimmune Disorders: Celiac Disease, Raynaud's Phenomena, and Lupus. Ehlers-Danlos Syndrome, IBS-C, Epilepsy, Autism, Depression, Anxiety, ...
2 comments
Autoimmune Disorders and Rare
Mar 22, 2018Mar 2018

Posted by LadyAlyxandrea
Tomorrow I'm going to ask my specialist about getting a handicap placard. My GP ks I'm exaggerating my need for it. Do you have any suggestions on how to ask for it without coming off as just lazy?
4 comments
Autoimmune Disorders and Rare
Apr 13, 2018Apr 2018

Posted by Alimacbean
Does anyone have Sjogren's Syndrome? If so, how difficult was it to get diagnosed? What symptoms led to the diagnosis?
3 comments
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by caraE
Hi, Does any one know about bdp(boderline personality) How can I manage it ??
4 comments
Autoimmune Disorders and Rare
Jul 1, 2018Jul 2018

Posted by BookDeath
Just in case anyone is interested, there is also now a Chronic Pain and Pain Management group.
0 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by BookDeath
I'm getting VERY tired tired of having to explain to each new doctor that no, I don't IBS (irritable bowel syndrome), bad enough though that is. I have collagenous colitis, which a form of INFLAMMATORY BOWEL DISEASE, akin to Crohn's and the like. It...
2 comments
Autoimmune Disorders and Rare
Sep 9, 2018Sep 2018

Posted by ArtzyNerd
Hi all. I'm celiac and PCOS. Also have IgA deficiency
2 comments
Autoimmune Disorders and Rare
Sep 15, 2018Sep 2018

Posted by LadyAlyxandrea
Day 2 post-fair: Despite increasing narcotic and NSAIDS I am still unable to walk. Luckily I only have to work 2 days 3 shifts before my next half day. I've also hired an attorney for my disability claim. I wanted to wait until my genetic testing ...
0 comments
Autoimmune Disorders and Rare
Sep 17, 2018Sep 2018

Posted by RobH86
Does anyone have experience of CBD infused water. I Have ulcerative colitis, and read today that Coke a Cola is considering making a drink with the oil in it. The only product I have found available to me now is called love hemp water. Does it really...
2 comments
Autoimmune Disorders and Rare
Oct 4, 2018Oct 2018

Posted by ArtzyNerd
Sign up for celiac trial
0 comments
Autoimmune Disorders and Rare
Nov 20, 2018Nov 2018

Posted by LadyAlyxandrea
A good discussion on fibromyalgia from my favorite web doc, Zdogg
0 comments
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
Fun stuff! My brother and father have the flu. Bad. Plot twist my stupid brother sipped out of my pop the other day too. If you recall I'm immunosuppressed. And last night I woke up with my throat on fire. Now it's still tender but not at all as ...
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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