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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Commented Posts By TaraMarshall (4) (Page 4 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jun 8, 2019Jun 2019

Posted by LadyAlyxandrea
I met with HR and was approved to begin part time as of august 1st. I also met with my new disability lawyer and he said my case will be difficult because of my age but he is certain i can win. Now comes the challenge: The judge my lawyer wants to ...
3 comments
Autoimmune Disorders and Rare
May 16, 2019May 2019

Posted by LadyAlyxandrea
My gp frustrates me sometimes. We work REALLY well together one on one, but when it comes to working together as a team on my issues that require working together with my entire healthcare team, he plugs his ears and goes "nananana let the diagnosing...
3 comments
Autoimmune Disorders and Rare
Mar 17, 2019Mar 2019

Posted by LadyAlyxandrea
Today was pretty good. I slept 8 hours and managed to stay awake the whole day without a nap. I cleaned my wounds and took a real shower, washed my hair and everything. That was a little too gunho, alas, and I nearly fainted in the shower. But I'm ...
3 comments
Autoimmune Disorders and Rare
Feb 18, 2019Feb 2019

Posted by Agenderaj
POLLHello! My name is AJ and my pronouns are they/them and he/him. I'm really happy to have found this group! I have gastroparesis and CVS, among other things. I was wondering who else here has GI conditions/issues, what they are, and how we might be ...
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3 comments
Autoimmune Disorders and Rare
Feb 10, 2019Feb 2019

Posted by LadyAlyxandrea
Oh non-existent lord give me strength. My aunt who is an RN is now a naturopathic homeopathic pyramid scheme smuck. I posted about how this new medicine gave me RLS. Suddenly she's linking me to veggies that counter RLS and teas and essential oils....
3 comments
Autoimmune Disorders and Rare
Feb 5, 2019Feb 2019

Posted by LadyAlyxandrea
I am SO livid. For a few weeks I've been having horrific facial flushing like ON FIRE feeling. I've been struggling with sleep. My angina came back for the first time since I was 18. My nerve pain is 40-60% worse than ever. And I found out today...
3 comments
Autoimmune Disorders and Rare
Jan 22, 2019Jan 2019

Posted by LadyAlyxandrea
When it comes to anything that you could possibly have an opinion on, I'm very loud and poignant, but in 6 years I've not said a word about vaxxers or antivaxxers. I have found that it is a hard subject for me to make an opinion on. On the one hand...
3 comments
Autoimmune Disorders and Rare
Jan 19, 2019Jan 2019

Posted by RavenCT
Truth,,,,,
3 comments
Autoimmune Disorders and Rare
Jan 11, 2019Jan 2019

Posted by Alimacbean
Could be a game changer.
3 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by LadyAlyxandrea
Oh give me strength because I am about to fucking throat punch two of my aunts. They constantly bully, exclude, and talk shit on my mom and of course the petty disrespectful jabs go into full fucking effect while we are desperately trying to figure ...
3 comments
Autoimmune Disorders and Rare
Mar 12, 2019Mar 2019

Posted by LadyAlyxandrea
Miraculously enough, I've finished it all. My bathroom sparkles, my living room is perfectly set up so I can reach my books and charger, my bedroom is perfect. The fridge is stocked, enough cigarettes to last me two weeks stacked neatly by my bed, my...
2 comments
Autoimmune Disorders and Rare
Jan 30, 2019Jan 2019

Posted by LadyAlyxandrea
Night terrors now. Fantastic.
2 comments
Autoimmune Disorders and Rare
Mar 29, 2019Mar 2019

Posted by LadyAlyxandrea
Yesterday for Dinner my brother and I went to McDonald's because ALL day i only wanted some freaking nugs. I went in starving because i knew we were going today and i was so excited for nugs And i ate 3 nugs and 5 fries and was almost sick from over...
2 comments
Autoimmune Disorders and Rare
Mar 23, 2019Mar 2019

Posted by LadyAlyxandrea
pain, infection, weird red scabs that look like scabies, unstable and bizarre sleeping patterns, hormone imbalance, absolutely ridiculous nightmares, root canal, only being able to be out for 3 hours before absolutely crashing... All this I can ...
2 comments
Autoimmune Disorders and Rare
Apr 3, 2019Apr 2019

Posted by ponz111
I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move. If I lay down to try and sleep it sets in. And i will hit the bed very hard with my fist a few times which helps only a few seconds. ...
2 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by LadyAlyxandrea
I've managed to sleep on and off for about 15 hours today. I'm actually in an uncharacteristically large amount of pain from the trip. It concerns me. My last three trips to Kansas city didn't hurt this bad. But I'm also fighting off a ...
2 comments
Autoimmune Disorders and Rare
May 10, 2019May 2019

Posted by LadyAlyxandrea
I'm cleaning the entire house today. Well, my half and the laundry and computer room (can we even call it a computer room anymore no one uses the computers and it's basically just become a storage area at the bottom of the stairs....) as well as ...
2 comments
Autoimmune Disorders and Rare
Mar 14, 2019Mar 2019

Posted by LadyAlyxandrea
Day 2: helppppp The abdominal pain wouldn't be so bad, if it were not for EVERY MUSCLE IN MY BODY feeling pulled. Muscles I didnt know i had hurt. Goodness gracious. Yesterday was alright, i felt pretty decent, but today holy moly no thank you. ...
2 comments
Autoimmune Disorders and Rare
May 16, 2019May 2019

Posted by LadyAlyxandrea
Gonna be a LOOOOOONG day....insomnia attack from hell of course when i have a meeting in 6 hours with my supervisor and HR about my shift to part time and my disability application and then an appointment with my doctor. Plus side friday i get my ...
2 comments
Shared from General & Hellos
Jun 26, 2019Jun 2019

Posted by PiperMckenna
Hello! I'm Piper. I've been diagnosed with Elhers-Danlos Syndrome. Anyone else have this diagnosis? I'm currently looking for recommendations for a nice shoulder brace because my shoulder just won't stay the heck in, tips on living with EDS, info ...
2 comments
Autoimmune Disorders and Rare
Jan 27, 2019Jan 2019

Posted by LadyAlyxandrea
I had a miracle!!!! Yesterday I couldn't walk at all, no weight on my leg. Then I massaged the muscle a little, oh mama did that hurt. But then I stood up and POOF all better! Well sorta. I can walk again. Still sore, and my kneecap is bruised on ...
2 comments
Autoimmune Disorders and Rare
Mar 20, 2018Mar 2018

Posted by Rugglesby
I don't have an auto immune problem myself, but many around me do, mother has lupus, an ex has schrogens, another ex has auto immune hepatitis, I went through transplant with her and a young friend has crohns..
2 comments
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by TaraMarshall
I have a regrettably list of diagnoses. Primary Immunodeficiency Disorders: Total IgA Deficiency and CVID. Autoimmune Disorders: Celiac Disease, Raynaud's Phenomena, and Lupus. Ehlers-Danlos Syndrome, IBS-C, Epilepsy, Autism, Depression, Anxiety, ...
2 comments
Autoimmune Disorders and Rare
Apr 2, 2018Apr 2018

Posted by Lysistrata
Has anyone here looked into autophagy? I have an AI condition that every medical professional has told me is largely untreatable. I tend to believe almost anything is treatable through diet, but my anti-inflammatory diet doesn't seem to be making...
2 comments
Autoimmune Disorders and Rare
Apr 3, 2018Apr 2018

Posted by Melbates
This is what I'm battling right now trying to explain to people my body doesn't work the way it looks like it should work.
2 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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