Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Oldest Posts By TaraMarshall (4) (Page 3 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by Monica
Hi everyone! I'm Monica and I have Lupus and my Rheumy said I also have fibromyalgia. I live in CA but I'm from Brooklyn, NY.
5 comments
Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by JesseBoren
Went to the hematologist today, she says it looks like I do have polycythemia vera. Go back in 10 days for final results, if those aren't definitive I will have to get a bone marrow biopsy. Luckily it's very treatable although it's called a blood ...
1 comment
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by nutrition_nerd
How many of you have heard of Adverse Childhood Experiences? There was a study conducted by the CDC and Kaiser Permanente, about the effect of childhood trauma on the body. The research is astounding. People with >4 Adverse Childhood Experiences had ...
7 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by CarolinaGirl60
I had trigger point injections today in my upper back/neck. In a few days, I’ll be glad. Right now though, may I just say::: OW! Fucking OW!!!!
3 comments
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by memorylikeasieve
So I went to physical therapy today for my initial appointment and they discovered that I have joint hypermobility, which is why everything slides out of whack so easily, and why I've been having so many dislocations and muscle spasms. It's kind of ...
1 comment
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by caraE
Hi, Does any one know about bdp(boderline personality) How can I manage it ??
4 comments
Autoimmune Disorders and Rare
Jun 25, 2018Jun 2018

Posted by BookDeath
Just returned from seeing my new neuro-nurse practitioner! (A female, btw.) She was like night and day from the previous neuro-jerk! We're titrating down from this horrid AED and discussed what is acceptable in terms of seizures. ALL AEDS have ...
2 comments
Autoimmune Disorders and Rare
Jun 28, 2018Jun 2018

Posted by Fredbeth
Hi. New member here. I have EPGA, with lung damage, Arthritis, Reynauds and various issues due to above illness. It all sucks. My heart goes out to all of us sufferers.
2 comments
Autoimmune Disorders and Rare
Jun 29, 2018Jun 2018

Posted by Flexymorals
I had Saturday Night Palsy once. Couldn’t move my hand for two months.
0 comments
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jul 1, 2018Jul 2018

Posted by BookDeath
Just in case anyone is interested, there is also now a Chronic Pain and Pain Management group.
0 comments
Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by Dingodog
So, how are you dealing with the social security, lack of income, insurance, copays and rent mortgage and so on. My wife was misdiagnosed with MS about 3 years ago even though she was asymptomatic. I just found out today that insurance for the with...
2 comments
Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by LadyAlyxandrea
I am pretty sure today will be the last day I can wear makeup. This is a acceptance because I've always really loved how pretty I am with makeup on, but as I struggled with my eyeliner and worse with my mascara I realized it's probably just not ...
2 comments
Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by LadyAlyxandrea
I threw my dinner on the floor. My tremors are so bad lately I always feel like I've got giant vibrators instead of arms. I normally laugh it off and try not to let it get to me, but watching the fried chicken I spent two hours making fly around my ...
1 comment
Autoimmune Disorders and Rare
Jul 4, 2018Jul 2018

Posted by LadyAlyxandrea
Anyone else's skin do this with even a slight touch? I'm a human etcha-sketch
3 comments
Autoimmune Disorders and Rare
Jul 6, 2018Jul 2018

Posted by memorylikeasieve
I work running deliveries with Door Dash, which is a lot like Uber Eats. Tonight I was unhappy with myself because I had to end my delivery hours earlier than I thought i should do. But with this narcolepsy and joint hypermobility I should probably...
1 comment
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Alimacbean
I've been working with an integrative doctor to find the source of my fibromyalgia. We've run a million tests and I've taken a butt load of supplements. No improvement. I'm worn down and at my witt's end. I really thought I'd have found an answer, ...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by nutrition_nerd
That's right!
2 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by LadyAlyxandrea
I want to start a daily ritual here. Id like as many of you to participate as you can and feel able to. I'm tired of pushing myself to try to meet the unrealistic expectations of others. Not everyone can overcome their disabilities through sheer ...
6 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Drsmash253
Hey everybody just spotted this group I believe I qualify as a member since I have rheumatoid arthritis I just spent three years working my way out of a wheelchair I still take Methotrexate injections but I'm slowly beating this damn thing
3 comments
Autoimmune Disorders and Rare
Jul 9, 2018Jul 2018

Posted by LadyAlyxandrea
My little victory today is that tomorrow I'll reach level 8 finally. That's all I really got today, but I'll try to make tomorrow a little better
4 comments
Autoimmune Disorders and Rare
Jul 10, 2018Jul 2018

Posted by Sydland
Hi everyone. I just need to vent. I’m a Type 1 diabetic with a pancreas that quit working, celiac, and Hashimotos. The past two weeks my hair started falling out in huge handfuls in the shower. It’s gone from being really thick to thin in ...
4 comments
Autoimmune Disorders and Rare
Jul 10, 2018Jul 2018

Posted by LadyAlyxandrea
Little Victory time! I went shopping a while ago, got some food. Came home and cooked some food and two angel food cakes (I call them faithless food cakes lol).
3 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
I've decided that once my bankruptcy is finalized apply for disability. Even now I do it reluctantly and rather like a child trying eat their veggies. I don't want . I really passionately don't want . It feels like admitting defeat. Like giving ...
5 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by Alimacbean
I miss the simple things about not having chronic pain. I miss cute shoes. I miss being able to stub my toe, say ouch, and get on with my day. I miss standing up straight after sitting down. I miss going to theme parks and walking the whole day. I ...
4 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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