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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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RecentPosts By TaraMarshall (4) (Page 8 / 9) Posts by anyone

Autoimmune Disorders and Rare
Apr 18, 2018Apr 2018

Posted by Robert56
I am going to bed. My new g is to pull up lights on youtube and let it play all night LIVE .
2 comments
Autoimmune Disorders and Rare
Apr 18, 2018Apr 2018

Posted by Robert56
Taking med right now including weed. Helps with my neurological pain in my legs . I was bitten late sept 2008.
3 comments
Autoimmune Disorders and Rare
Apr 13, 2018Apr 2018

Posted by Alimacbean
Does anyone have Sjogren's Syndrome? If so, how difficult was it to get diagnosed? What symptoms led to the diagnosis?
3 comments
Autoimmune Disorders and Rare
Apr 13, 2018Apr 2018

Posted by jjenakabc
Holy shit!! I can NOT believe what Im seeing!! EDS peeps!! YES!!!!! My EDS/ Chronic Pain, has really affected EVERY part of my life and although I KNOW we are not supposed to let it become our IDENTITY Im finding it VERY hard.
3 comments
Autoimmune Disorders and Rare
Apr 11, 2018Apr 2018

Posted by KKGator
Just needing to gripe a little. Having a major fibro-flare. It's been going on for about 3 months now. Not taking anything but Tylenol for pain, which is migrating all over the place. Wish I had a big bag of weed!!!! Seems to be the only thing ...
6 comments
Shared from Health & Happiness
Apr 11, 2018Apr 2018

Posted by TaraMarshall
Woke up with right hip partially dislocated, can't get it to slip back into place. Ow. Need to suck it up, I've got a meeting with the Phoenix PD Cross Disability Advisory Council to get to. Life with Ehlers-Danlos Syndrome. If I can't get it ...
2 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by JustADreamer
I have Guillain-Barre Syndrome. First time was 9/12/1993. Was in Sarasota Memorial Hospital for 6 months. . The hospital did a story on me, as well as a medical magazine, from California. Critical Care Nurses. October of 1994. Hope to...
2 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Basilisa01
Thank you for making this group. I was diagnosed with polydermatomyositis, fibromialya and IBS on Dec 2011. My conditions atracks all type of muscles, the skin and my digestive system. The treatments caused me lost of near and far sight, diabetes, ...
2 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by vita
Anyone here battling chronic Lyme disease and coinfections? If so, how are you handling your presumably pro-science outlook with your denied-by-science diagnosis? (To anyone who might feel like telling me I don't have CLD, you should know that it ...
5 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Allikat
New to the group. I have lived with Psoriasis for the past 16years, I have also been told other wierd skin patches are eczema a with crippling gut issues. I am on Stalara, my 3rd type of biologic shot it's seems to keep my skin as clear as Embrel or ...
3 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Corsaire
New to the site but am very interested in meeting like minded individuals.... my affliction is cushing's disease.
1 comment
Autoimmune Disorders and Rare
Apr 8, 2018Apr 2018

Posted by Melbates
Body is a temple
3 comments
Autoimmune Disorders and Rare
Apr 6, 2018Apr 2018

Posted by LadyAlyxandrea
Sorry I'm all out of spoons but can I offer you a knife instead? -stabs-
3 comments
Autoimmune Disorders and Rare
Apr 5, 2018Apr 2018

Posted by LadyAlyxandrea
So after work I checked into our e.r. to get a torodol shot for my perpetual migraine. In the middle of getting examined, my left nostril starts dripping water. Doctor R ks "Hm I don't feel right just popping you a cocktail and letting you run off. I...
2 comments
Autoimmune Disorders and Rare
Apr 4, 2018Apr 2018

Posted by LadyAlyxandrea
Every time
4 comments
Autoimmune Disorders and Rare
Apr 3, 2018Apr 2018

Posted by Melbates
This is what I'm battling right now trying to explain to people my body doesn't work the way it looks like it should work.
2 comments
Autoimmune Disorders and Rare
Apr 2, 2018Apr 2018

Posted by Lysistrata
Has anyone here looked into autophagy? I have an AI condition that every medical professional has told me is largely untreatable. I tend to believe almost anything is treatable through diet, but my anti-inflammatory diet doesn't seem to be making...
2 comments
Autoimmune Disorders and Rare
Apr 2, 2018Apr 2018

Posted by LadyAlyxandrea
Well today was my last OT session, and my new weighted silverware arrived so yay. Unfortunately still have not heard from the Geneticist about an appointment ugh and my neuro is out for two days so I can't tell him about the medicine reactions.
1 comment
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by RobH86
Sad to hear about one of my favourite Magicians 'Dynamo'. He is very popular over here in the UK and I knew he had Chron's disease, but it didn't seem to affect him until now. I myself have Ulcerative Colitis (similar to Chron's) and have suffered ...
1 comment
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by LadyAlyxandrea
I am just so pissed off with this war on opioids. It drives me nuts. My pain doctor is now being squeezed into getting me off pain meds, and with very little alternative aid. It is not because he wants to either. It's because I'm 27 and have no ...
5 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by LadyAlyxandrea
So I've now been diagnosed with essential tremor and Mylonic jerking? Weird
3 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by Cassandra
I fell off my porch yesterday. I have fibromyalgia & diabetes (& others), which I've never received proper medical care for. I get periodic flare ups of inflammation that cause muscle pain and weakness. For the last few weeks, my left ankle has ...
5 comments
Autoimmune Disorders and Rare
Mar 22, 2018Mar 2018

Posted by LadyAlyxandrea
Tomorrow I'm going to ask my specialist about getting a handicap placard. My GP ks I'm exaggerating my need for it. Do you have any suggestions on how to ask for it without coming off as just lazy?
4 comments
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by LadyAlyxandrea
Has anyone here heard of or been diagnosed with hidradenitis suppurtiva or HS?
1 comment
Autoimmune Disorders and Rare
Mar 21, 2018Mar 2018

Posted by JulieBFree
I was diagnosed with Type 1 diabetes shortly after my daughter was born in 2008. I also have low thyroid and arthritis that (thankfully) only flares up once in a while. Thanks for creating this group. :)
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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