Agnostic.com

Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

Most Viewed Posts By TaraMarshall (4) (Page 2 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jul 3, 2018Jul 2018

Posted by Dingodog
So, how are you dealing with the social security, lack of income, insurance, copays and rent mortgage and so on. My wife was misdiagnosed with MS about 3 years ago even though she was asymptomatic. I just found out today that insurance for the with...
2 comments
Autoimmune Disorders and Rare
Apr 20, 2018Apr 2018

Posted by LadyAlyxandrea
Interesting development So for as long as I've had my pain, steroids of any kind have done...well...nothing. So a few weeks ago I developed pitiriusis rosea, a viral infection like chicken pox that covers your body in a massive amount of ringworm ...
5 comments
Autoimmune Disorders and Rare
Aug 16, 2018Aug 2018

Posted by JesseBoren
They finally put a label on my illness after 18 years of searching, Cramping fasciculation syndrome.
5 comments
Autoimmune Disorders and Rare
Nov 30, 2018Nov 2018

Posted by itsmedammit
With any luck I will be finding a diagnosis in the near future. I have some sort of autoimmune thing going on, but not sure what. I hate, hate, hate having to spend time trying to figure this out but my pain compels me to do something. Saw a ...
3 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by Haemish1
Any Hashimotos people here?
5 comments
Autoimmune Disorders and Rare
Apr 2, 2018Apr 2018

Posted by Lysistrata
Has anyone here looked into autophagy? I have an AI condition that every medical professional has told me is largely untreatable. I tend to believe almost anything is treatable through diet, but my anti-inflammatory diet doesn't seem to be making...
2 comments
Autoimmune Disorders and Rare
Aug 19, 2018Aug 2018

Posted by Alimacbean
My mind so badly wants to get in shape and lose this 25 pounds weighing so heavily on me, in more ways than one. But my body is exhausted at the end of the day and longs to rest on the couch counting the minutes until it's bed time. I miss my ...
5 comments
Autoimmune Disorders and Rare
Apr 18, 2018Apr 2018

Posted by Robert56
Taking med right now including weed. Helps with my neurological pain in my legs . I was bitten late sept 2008.
3 comments
Autoimmune Disorders and Rare
Aug 13, 2018Aug 2018

Posted by CarolinaGirl60
I’m in the hospital. Had a gastroparesis flare plus a nasty virus. Feeling MUCH better today; might go home tomorrow.
6 comments
Autoimmune Disorders and Rare
Apr 3, 2018Apr 2018

Posted by Melbates
This is what I'm battling right now trying to explain to people my body doesn't work the way it looks like it should work.
2 comments
Autoimmune Disorders and Rare
Jun 18, 2018Jun 2018

Posted by MusicLvr
Hello, I'm new here. I have fibro, DDD, arthritis, joint hypermobility, among some other things. Saw a new rheumy today, bc mine no longer takes my ins. The new one was awful. Treated me like a junkie, wouldn't let me finish a sentence. Looking ...
5 comments
Autoimmune Disorders and Rare
Oct 1, 2018Oct 2018

Posted by LadyAlyxandrea
I got the results from my cervical and brain MRI. Brain is hunky dory. Unremarkable. Odd, actually, given the huge amount of mental issues I have. My neck has gotten worse. Either he didn't have a really clear image of it a few years ago, or it ...
3 comments
Autoimmune Disorders and Rare
May 4, 2018May 2018

Posted by TampaHeathen
Hi, new member. I was diagnosed with Hashimoto's Thyroiditis on the same day as the Boston Marathon bombing (early reports were playing on the TV set in the waiting room as I was walking out). While primarily a disease common to females, one in ...
6 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by sassygirl3869
Should I go to emergency room with my chronic illness?
3 comments
Autoimmune Disorders and Rare
Jun 25, 2018Jun 2018

Posted by BookDeath
Just returned from seeing my new neuro-nurse practitioner! (A female, btw.) She was like night and day from the previous neuro-jerk! We're titrating down from this horrid AED and discussed what is acceptable in terms of seizures. ALL AEDS have ...
2 comments
Autoimmune Disorders and Rare
Jun 22, 2018Jun 2018

Posted by CarolinaGirl60
I had trigger point injections today in my upper back/neck. In a few days, I’ll be glad. Right now though, may I just say::: OW! Fucking OW!!!!
3 comments
Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by Monica
Hi everyone! I'm Monica and I have Lupus and my Rheumy said I also have fibromyalgia. I live in CA but I'm from Brooklyn, NY.
5 comments
Autoimmune Disorders and Rare
Sep 17, 2018Sep 2018

Posted by RobH86
Does anyone have experience of CBD infused water. I Have ulcerative colitis, and read today that Coke a Cola is considering making a drink with the oil in it. The only product I have found available to me now is called love hemp water. Does it really...
2 comments
Autoimmune Disorders and Rare
Dec 2, 2018Dec 2018

Posted by sassygirl3869
18 Common Pet Peeves When You Have Chronic Illness
2 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by Dingodog
My wife was misdiagnosed with MS a few years back. She was 60, asymptomatic but had a plaque pattern on consistant with, but not exclusive to MS. They started he on an MS drug right away. I later learned the there is no medical therapy that will ...
0 comments
Autoimmune Disorders and Rare
Nov 10, 2018Nov 2018

Posted by LadyAlyxandrea
Psst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)
4 comments
Autoimmune Disorders and Rare
Apr 8, 2018Apr 2018

Posted by Melbates
Body is a temple
3 comments
Autoimmune Disorders and Rare
Nov 18, 2018Nov 2018

Posted by rogeralyn
About 2 weeks ago I asked Tara if I could post this here and have not heard a response so... I am starting a new site designed for people who have a chronic illness or condition and find it hard to start a relationship on other dating sites. It's ...
0 comments
Autoimmune Disorders and Rare
Dec 7, 2018Dec 2018

Posted by LadyAlyxandrea
For the last 3 years or so I get severe, painful hiccups whenever I drink something really cold. These hiccups do not stop at all unless I take a cyclobenzaprine (muscle relaxant). They're actually more than hiccups, it's part of my dystonia. My ...
3 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Multiple Sclerosis Relief
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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