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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Viewed Posts By TaraMarshall (4) (Page 4 / 9) Posts by anyone

Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
A gentle reminder
0 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by LadyAlyxandrea
Little victory Got my tags today. (Cost 200 dollars more than they were supposed to) Budgeted with 'help' from my slave driver I mean mother. She is ridiculous. Somehow after she budgeted I had 5 dollars left for groceries for 2 weeks, and had me ...
1 comment
Autoimmune Disorders and Rare
Jul 30, 2018Jul 2018

Posted by memorylikeasieve
Little victory: to-day I made a homemade barbecue sauce despite awful back pain. It entailed over an hour of standing at a stove in arch support shoes and a back brace, but I did it!
2 comments
Autoimmune Disorders and Rare
Aug 15, 2018Aug 2018

Posted by LadyAlyxandrea
Monday I was given a steroid shot for an allergy attack. Normally this would help my pain substantially. However the last three days I've hurt so bad it's like triple the normal levels. Now either the steroids didn't work, or they're working and ...
3 comments
Autoimmune Disorders and Rare
Oct 5, 2018Oct 2018

Posted by rogeralyn
Well, no big surprise here. Rules Are for Schmucks: Trashing Research:
1 comment
Autoimmune Disorders and Rare
Nov 1, 2018Nov 2018

Posted by LadyAlyxandrea
For today's game of "whats that weird random pain" I broke my big toe. Bad. That should be something you remember doing or have a vague idea how it happened. I was just sitting at my desk not doing anything and suddenly my toe hurt like something...
3 comments
Autoimmune Disorders and Rare
Dec 23, 2018Dec 2018

Posted by sassygirl3869
13 People Who Stood Up For Chronic Illness
1 comment
Autoimmune Disorders and Rare
Jan 1, 2019Jan 2019

Posted by LadyAlyxandrea
How it feels going to the doctor
2 comments
Autoimmune Disorders and Rare
Jan 30, 2019Jan 2019

Posted by LadyAlyxandrea
Night terrors now. Fantastic.
2 comments
Autoimmune Disorders and Rare
Mar 2, 2019Mar 2019

Posted by LadyAlyxandrea
Still alive!!! I know many of you (like 2) have been wondering where I've been. Truthfully I discovered the video game I used to play like 15 years ago came out on mobile so.... Anyway, I am having surgery on the 13th. Passed my preop appointment ...
4 comments
Autoimmune Disorders and Rare
Feb 10, 2019Feb 2019

Posted by LadyAlyxandrea
Oh non-existent lord give me strength. My aunt who is an RN is now a naturopathic homeopathic pyramid scheme smuck. I posted about how this new medicine gave me RLS. Suddenly she's linking me to veggies that counter RLS and teas and essential oils....
3 comments
Autoimmune Disorders and Rare
Jan 23, 2019Jan 2019

Posted by LadyAlyxandrea
I fell on the ice yesterday. Yep. Both legs are completely out of commission. I now have no working arms, nor legs. I'm just an emotional talking paperweight
4 comments
Autoimmune Disorders and Rare
Jan 11, 2019Jan 2019

Posted by Alimacbean
Could be a game changer.
3 comments
Autoimmune Disorders and Rare
Jan 22, 2019Jan 2019

Posted by LadyAlyxandrea
When it comes to anything that you could possibly have an opinion on, I'm very loud and poignant, but in 6 years I've not said a word about vaxxers or antivaxxers. I have found that it is a hard subject for me to make an opinion on. On the one hand...
3 comments
Autoimmune Disorders and Rare
Jan 19, 2019Jan 2019

Posted by RavenCT
Truth,,,,,
3 comments
Autoimmune Disorders and Rare
Jan 27, 2019Jan 2019

Posted by LadyAlyxandrea
I had a miracle!!!! Yesterday I couldn't walk at all, no weight on my leg. Then I massaged the muscle a little, oh mama did that hurt. But then I stood up and POOF all better! Well sorta. I can walk again. Still sore, and my kneecap is bruised on ...
2 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by LadyAlyxandrea
I've managed to sleep on and off for about 15 hours today. I'm actually in an uncharacteristically large amount of pain from the trip. It concerns me. My last three trips to Kansas city didn't hurt this bad. But I'm also fighting off a ...
2 comments
Autoimmune Disorders and Rare
Jan 17, 2019Jan 2019

Posted by LadyAlyxandrea
HUZZAH I am finally getting my ovary and fallopian tubes removed! Without no husbands permission! How bout that.
1 comment
Autoimmune Disorders and Rare
Apr 2, 2018Apr 2018

Posted by LadyAlyxandrea
Well today was my last OT session, and my new weighted silverware arrived so yay. Unfortunately still have not heard from the Geneticist about an appointment ugh and my neuro is out for two days so I can't tell him about the medicine reactions.
1 comment
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by JustADreamer
I have Guillain-Barre Syndrome. First time was 9/12/1993. Was in Sarasota Memorial Hospital for 6 months. . The hospital did a story on me, as well as a medical magazine, from California. Critical Care Nurses. October of 1994. Hope to...
2 comments
Autoimmune Disorders and Rare
Jun 21, 2018Jun 2018

Posted by JesseBoren
Went to the hematologist today, she says it looks like I do have polycythemia vera. Go back in 10 days for final results, if those aren't definitive I will have to get a bone marrow biopsy. Luckily it's very treatable although it's called a blood ...
1 comment
Autoimmune Disorders and Rare
Jun 28, 2018Jun 2018

Posted by Fredbeth
Hi. New member here. I have EPGA, with lung damage, Arthritis, Reynauds and various issues due to above illness. It all sucks. My heart goes out to all of us sufferers.
2 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by BookDeath
I'm getting VERY tired tired of having to explain to each new doctor that no, I don't IBS (irritable bowel syndrome), bad enough though that is. I have collagenous colitis, which a form of INFLAMMATORY BOWEL DISEASE, akin to Crohn's and the like. It...
2 comments
Autoimmune Disorders and Rare
Aug 27, 2018Aug 2018

Posted by LadyAlyxandrea
After spraining My ankle I turned around two hours later and broke my toe. Y'all don't know how gross it is to set a toe bone. It made a squishing pop
2 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by SkyBlue_Crayon
Hi, I have psoriatic arthritis and Raynaud’s. Happy to connect with all of you.
5 comments

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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