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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Viewed Posts By TaraMarshall (4) (Page 5 / 9) Posts by anyone

Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Going through the "memories" on Facebook and I realized it's just a journal of my disorder and chronic pain of me slowly evolving from "DRUGS ARE BAD!" to "Drugs are good, m'kay" In my defense I will not actually survive without my medicine, and I ...
2 comments
Autoimmune Disorders and Rare
Nov 12, 2018Nov 2018

Posted by LadyAlyxandrea
So I broke the small bones in my left foot and my toe about two months ago. I've not followed up with an ortho because my neck is more important to get fixed and I can only afford one major issue a year. Anyway my other foot the toenail on my big toe...
2 comments
Autoimmune Disorders and Rare
Jan 4, 2019Jan 2019

Posted by LadyAlyxandrea
Well this proved to be the most productive appointment ever. I finally got answers. Not good answers but answers finally. The nerve conduction test showed substantial deterioration of my radial nerves all from...guess where....my c5. Fuckin ...
3 comments
Autoimmune Disorders and Rare
Mar 28, 2018Mar 2018

Posted by RobH86
Sad to hear about one of my favourite Magicians 'Dynamo'. He is very popular over here in the UK and I knew he had Chron's disease, but it didn't seem to affect him until now. I myself have Ulcerative Colitis (similar to Chron's) and have suffered ...
1 comment
Autoimmune Disorders and Rare
Apr 6, 2018Apr 2018

Posted by LadyAlyxandrea
Sorry I'm all out of spoons but can I offer you a knife instead? -stabs-
3 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Allikat
New to the group. I have lived with Psoriasis for the past 16years, I have also been told other wierd skin patches are eczema a with crippling gut issues. I am on Stalara, my 3rd type of biologic shot it's seems to keep my skin as clear as Embrel or ...
3 comments
Autoimmune Disorders and Rare
Apr 13, 2018Apr 2018

Posted by Alimacbean
Does anyone have Sjogren's Syndrome? If so, how difficult was it to get diagnosed? What symptoms led to the diagnosis?
3 comments
Autoimmune Disorders and Rare
Jun 20, 2018Jun 2018

Posted by rogeralyn
Having one of those days where I want to give in and scream! Not very manly I know but don't care right now.
3 comments
Autoimmune Disorders and Rare
Jul 9, 2018Jul 2018

Posted by LadyAlyxandrea
My little victory today is that tomorrow I'll reach level 8 finally. That's all I really got today, but I'll try to make tomorrow a little better
4 comments
Autoimmune Disorders and Rare
Jul 10, 2018Jul 2018

Posted by Sydland
Hi everyone. I just need to vent. I’m a Type 1 diabetic with a pancreas that quit working, celiac, and Hashimotos. The past two weeks my hair started falling out in huge handfuls in the shower. It’s gone from being really thick to thin in ...
4 comments
Autoimmune Disorders and Rare
Aug 1, 2018Aug 2018

Posted by LadyAlyxandrea
I fell down on the driveway. Both ankles, knees, palms, wrists, and shoulders are very displeased. Some nice scratches and bruises but nothing broke, thanks to the fact that I'm made of rubber.
4 comments
Autoimmune Disorders and Rare
Aug 17, 2018Aug 2018

Posted by BookDeath
I'm getting EXTREMELY tired of having to be the one to go to my neuro to inform them of diagnoses: thalamic pain syndrome; pseudobulbar affect; etc. I should have been told these types of things were headed my way potentially, not the other way ...
0 comments
Autoimmune Disorders and Rare
Aug 24, 2018Aug 2018

Posted by LadyAlyxandrea
It's not fair that I have all the suffering of Crohn's disease and none of the weightloss. If I have to suffer I'd rather it have one silver lining
2 comments
Autoimmune Disorders and Rare
Sep 19, 2018Sep 2018

Posted by LadyAlyxandrea
My pain is getting much worse. I've dropped out of taekwando because I just hurt too much now. Master says I can still participate the days I can and I don't have to do everything, I can sit out as much as I need, too. He's so kind and understanding ...
2 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by sassygirl3869
Fibromyalgia Relief
2 comments
Autoimmune Disorders and Rare
Nov 3, 2018Nov 2018

Posted by LadyAlyxandrea
Okay...Um....ummm So I bought a bunch of halloween discounted candy and in it was a bag of oreo candy bars. I ate a SHIT TON yesterday and today (not a good idea but they tasted so good!) They contain hazelnut. Something I didnt realize until just...
1 comment
Autoimmune Disorders and Rare
Nov 4, 2018Nov 2018

Posted by LadyAlyxandrea
The war on opioids has claimed yet another victim. Day after day I hear of another pain patient committing suicide, and today is no different except this time they committed suicide by cop, and it was my moms friend. Today, I felt a sort of ...
2 comments
Autoimmune Disorders and Rare
Nov 22, 2018Nov 2018

Posted by rogeralyn
Based on feedback I've changed the name and web address of the previously announed new dating website for the chronically ill. It's now at:
0 comments
Autoimmune Disorders and Rare
Feb 18, 2019Feb 2019

Posted by Agenderaj
POLLHello! My name is AJ and my pronouns are they/them and he/him. I'm really happy to have found this group! I have gastroparesis and CVS, among other things. I was wondering who else here has GI conditions/issues, what they are, and how we might be ...
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3 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by Nunulady
The Science of Stress and How Our Emotions Affect Our Susceptibility to Burnout and Disease . I hope you can access this. It's an article from Brain Pickings.
1 comment
Autoimmune Disorders and Rare
Mar 8, 2019Mar 2019

Posted by Swanky
Hello, I have been living with a Systemic Sclerosis limited/cutaneous diagnosis since 1994, and was just recently diagnosed with Antiphospholipid Syndrome, a blood clotting disorder. I'm wondering if anyone has these conditions? Thank you.
1 comment
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by Basilisa01
Thank you for making this group. I was diagnosed with polydermatomyositis, fibromialya and IBS on Dec 2011. My conditions atracks all type of muscles, the skin and my digestive system. The treatments caused me lost of near and far sight, diabetes, ...
2 comments
Autoimmune Disorders and Rare
Jun 29, 2018Jun 2018

Posted by Flexymorals
I had Saturday Night Palsy once. Couldn’t move my hand for two months.
0 comments
Autoimmune Disorders and Rare
Jul 13, 2018Jul 2018

Posted by LadyAlyxandrea
I've a lengthy to do list today, despite wanting to spend it all in bed. So far I'm doing good. Frequent breaks, doing what I can do sitting down. I still need to get the trash together so my brother can take it out for me (too hard to take it ...
2 comments
Autoimmune Disorders and Rare
Jul 25, 2018Jul 2018

Posted by rogeralyn
Thought this was interesting in general. "These 9 behaviors could cut your dementia risk by 35 percent"
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief

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