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Autoimmune Disorders and Rare

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

For non-believers with Autoimmune Disorders and Rare Disorders. Lupus, Raynaud's, Celiac, MS, etc., Ehlers-Danlos Syndrome, Primary Immunodeficiency Disorders, 22q Deletion, etc.

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Most Viewed Posts By TaraMarshall (4) (Page 3 / 9) Posts by anyone

Autoimmune Disorders and Rare
Feb 5, 2019Feb 2019

Posted by LadyAlyxandrea
I am SO livid. For a few weeks I've been having horrific facial flushing like ON FIRE feeling. I've been struggling with sleep. My angina came back for the first time since I was 18. My nerve pain is 40-60% worse than ever. And I found out today...
3 comments
Autoimmune Disorders and Rare
Jan 18, 2019Jan 2019

Posted by LadyAlyxandrea
Oh give me strength because I am about to fucking throat punch two of my aunts. They constantly bully, exclude, and talk shit on my mom and of course the petty disrespectful jabs go into full fucking effect while we are desperately trying to figure ...
3 comments
Autoimmune Disorders and Rare
Jan 6, 2019Jan 2019

Posted by sassygirl3869
Chronic Illness Makes it Hurtful to Look at Social Media?
5 comments
Autoimmune Disorders and Rare
Mar 11, 2019Mar 2019

Posted by LadyAlyxandrea
Behold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days. One day left of work. The doctor took me off 90% of my pain meds before surgery, to thicken up my blood. This has been a very horrifying time. I've discovered ...
5 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by LadyAlyxandrea
So I've now been diagnosed with essential tremor and Mylonic jerking? Weird
3 comments
Autoimmune Disorders and Rare
Apr 11, 2018Apr 2018

Posted by KKGator
Just needing to gripe a little. Having a major fibro-flare. It's been going on for about 3 months now. Not taking anything but Tylenol for pain, which is migrating all over the place. Wish I had a big bag of weed!!!! Seems to be the only thing ...
6 comments
Autoimmune Disorders and Rare
Apr 23, 2018Apr 2018

Posted by LadyAlyxandrea
Explaining proprioception disorders to children and non-medically inclined people: "Why do you wear those weird gloves?" "Sometimes my fingers or hands wander off and they help me to know where they are."
3 comments
Autoimmune Disorders and Rare
Apr 26, 2018Apr 2018

Posted by JustADreamer
September 12, 1993 is when my life changed. Single mom of two boys, ages 2 and 4. I got Guillain Barre Syndrome. Was in Sarasota Memorial Hospital for six months. Being an introvert and disabled has made things a bit harder. Recently, dated a friend....
4 comments
Autoimmune Disorders and Rare
Jun 23, 2018Jun 2018

Posted by memorylikeasieve
So I went to physical therapy today for my initial appointment and they discovered that I have joint hypermobility, which is why everything slides out of whack so easily, and why I've been having so many dislocations and muscle spasms. It's kind of ...
1 comment
Autoimmune Disorders and Rare
Jun 30, 2018Jun 2018

Posted by Lady-DebianLinux
Hello to all...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Alimacbean
I've been working with an integrative doctor to find the source of my fibromyalgia. We've run a million tests and I've taken a butt load of supplements. No improvement. I'm worn down and at my witt's end. I really thought I'd have found an answer, ...
3 comments
Autoimmune Disorders and Rare
Jul 8, 2018Jul 2018

Posted by Drsmash253
Hey everybody just spotted this group I believe I qualify as a member since I have rheumatoid arthritis I just spent three years working my way out of a wheelchair I still take Methotrexate injections but I'm slowly beating this damn thing
3 comments
Autoimmune Disorders and Rare
Jul 11, 2018Jul 2018

Posted by LadyAlyxandrea
I've decided that once my bankruptcy is finalized apply for disability. Even now I do it reluctantly and rather like a child trying eat their veggies. I don't want . I really passionately don't want . It feels like admitting defeat. Like giving ...
5 comments
Autoimmune Disorders and Rare
Jul 12, 2018Jul 2018

Posted by ColoradoSass
So happy to find this group. I have Hashimoto's disease and now I have some sort of "unidentified autoimmune disease". It acts like Celiacs but doesn't have the same genetic markers as Celiacs so they don't know what it is. The struggle is real. ...
4 comments
Autoimmune Disorders and Rare
Jul 13, 2018Jul 2018

Posted by StevenB83
So what exactly is an anti inflammatory diet? I thought meat was an inflammatory.
3 comments
Autoimmune Disorders and Rare
Aug 18, 2018Aug 2018

Posted by CarolinaGirl60
???Sigh. My kids showed up today for an ‘intervention’. My going to the ER last weekend, then being admitted, was apparently too much. Too much what, I’m not sure. My son tells me I’m depressed and that’s why I vomit and stay in bed all ...
5 comments
Autoimmune Disorders and Rare
Aug 20, 2018Aug 2018

Posted by LadyAlyxandrea
My short term memory is so bad. I put like 4 coats of deodorant on in the morning because I forget whether or not I've put it on. I constantly forget to take my lunch to work or take my lunch box home after work. I forget my wallet at least once a ...
6 comments
Autoimmune Disorders and Rare
Oct 9, 2018Oct 2018

Posted by RavenCT
How did I not know that pain tracking apps. now exist! This is just one - so do your own research folks.
0 comments
Autoimmune Disorders and Rare
Dec 17, 2018Dec 2018

Posted by LadyAlyxandrea
Narcolepsy. Let me tell you out of ALL of the problems I have I think that one is the most inconvenient. Growing up I never understood just how powerful narcolepsy can be. I would complain about my mom always falling asleep "come on just get up and ...
2 comments
Autoimmune Disorders and Rare
Dec 18, 2018Dec 2018

Posted by OnFire
Anyone had any luck with the FODMAP diet?
3 comments
Autoimmune Disorders and Rare
Mar 27, 2018Mar 2018

Posted by Cassandra
I fell off my porch yesterday. I have fibromyalgia & diabetes (& others), which I've never received proper medical care for. I get periodic flare ups of inflammation that cause muscle pain and weakness. For the last few weeks, my left ankle has ...
5 comments
Autoimmune Disorders and Rare
Apr 9, 2018Apr 2018

Posted by vita
Anyone here battling chronic Lyme disease and coinfections? If so, how are you handling your presumably pro-science outlook with your denied-by-science diagnosis? (To anyone who might feel like telling me I don't have CLD, you should know that it ...
5 comments
Autoimmune Disorders and Rare
Jun 16, 2018Jun 2018

Posted by CarolinaGirl60
Gastroparesis is now in month 10 of serious flare(last bad one lasted nearly two years). I also have fibromyalgia and a few other things to deal with. In the past month, I could fit the amount of solid food I ate into a sandwich ziplock...but no ...
3 comments
Autoimmune Disorders and Rare
Jul 1, 2018Jul 2018

Posted by BookDeath
Just in case anyone is interested, there is also now a Chronic Pain and Pain Management group.
0 comments
Autoimmune Disorders and Rare
Jul 6, 2018Jul 2018

Posted by memorylikeasieve
I work running deliveries with Door Dash, which is a lot like Uber Eats. Tonight I was unhappy with myself because I had to end my delivery hours earlier than I thought i should do. But with this narcolepsy and joint hypermobility I should probably...
1 comment

Photos 29 More

Posted by Sonja44Sums it up.

Posted by Sonja44This meme cracks me up. I'm Fine.

Posted by PiperMckennaAlways cold + sick days = Mermaid. Sometimes living with peoples who like the AC isn't such a bad thing.

Posted by PiperMckennaI'm quite prone to bruising because of EDS....any tips on how to reduce the look of bruises? Ideally I'd like to prevent them. But it's too late for that today. haha

Posted by LadyAlyxandreaI didn't learn my lesson well enough in March when my incisions refused to heal because i was working the crazy shifts.

Posted by ponz111I have restless leg syndrome which is not uncommon but with me it is my whole body which has the complusion to move.

Posted by LadyAlyxandreaPost op day 3 update: There will be some TMI, which I will mark so you can skip if you don't want to get grossed out.

Posted by LadyAlyxandreaBehold!!!! My weightloss progress thus far!!!! And an update: Surgery in two days.

Posted by RavenCTTruth,,,,,

Posted by LadyAlyxandreaHow it feels going to the doctor

Posted by LutherzmeAnybody else have to do this once a week?

Posted by LadyAlyxandreaPsst hey kid.... You wanna see something cool? (I scared the shit out of my ortho p.a. as he walked by my office. It was freaking hysterical)

Posted by LadyAlyxandreaFor today's game of "whats that weird random pain" I broke my big toe.

Posted by LadyAlyxandreaSo I finally have the date for MEETING my new neurosurgeon.

Posted by sassygirl3869Medical Reasons For Using Cannabis

Posted by sassygirl3869Multiple Sclerosis Relief
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